Chronically Empowered Podcast

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This morning, I experienced a full-on jump-scare moment. I opened up LinkedIn while I was having my morning half-cup of coffee, ready to read through what other people had posted last night while I slept, and… OH! There was my chitty-chatty face chitty-chatting away in a video clip!

You see, several months ago when I started this blog to record my healthcare journey, I started looking for other people who were doing the same thing – I wanted proof, as it were, that it was possible to heal yourself, evidence that people might want to hear about it, validation that I was not alone. And that’s when I came across Roi Shternin.

Roi’s homepage on his website reads:

I got sick. The system sucked. So I decided to blow it up.

That’s how my journey as a patient advocate and healthcare innovator began. The fight for my own health ignited a fire in me to transform a system that left patients powerless.

Well now, that was a lot more radical and empowered than I felt, that’s for sure, but I really admired his oomph. I went looking for proof that we can heal ourselves (with or without the healthcare system) and then help others – and here it was – proof indeed.

Roi is the ‘real-deal’; he has a blog, published books, recorded podcasts and is a keynote speaker, so, imagine my enthusiasm when I noticed on LinkedIn that Roi was starting a new podcast that would include interviews with patients and providers, in an attempt to encourage others to heal. Now, imagine my delight when he agreed to interview me. Then, imagine my gob-smacking-surprise when I discovered that I was the first interview he put to air last night for his new Chronically Empowered Podcast!!

Before I give you the link – and I would LOVE for you to go listen to it (for my sake, Roi’s, AND yours) – I want to recount a short conversation that occurred on the day I had my discussion with Roi. My youngest daughter, who’s 15 years old, looked me in the eye and said, “Mum… you know that you’re a shy person… and that means that when you talk to strangers you tend to go a bit crazy and talk non-stop super-fast… remember this is his podcast, so make sure that you let him do all the talking… do your best to talk slowly and stay calm.” I replied with a “sure-sure-yeah-yeah” and then…

I did exactly what she told me not to do. Roi asks me to introduce myself and I managed to fit my whole life story into a minutes-long rant in which I barely stopped for breath, and then burst out laughing and apologized for taking over. Roi, to his credit, was super generous and professional (he never cut me off and was always open to my long-winded-answers).

In my defense, I started out star-struck and nervous (Roi is a ‘next-level’ patient-advocate who talks on stages all around the world) to getting into my groove, and then becoming super-passionate about what I was saying.

I haven’t listened back to what I said yet (the podcast only came out last night), but already I’m a little bit nervous all over again; what does it mean to be “about 52 years old”? I do, however, remember one thing that I said (possibly repeated a couple of times over!?): “if you do one thing tonight – plant the seed of hope in your heart: you CAN heal.” I stand by that 100%.

Here’s the link to the podcast, and don’t forget to keep an eye out for Roi’s other interviews and discussions that will hopefully inspire you to keep going and keep growing: How mindfulness got a 3 year long Migraine under control! (substack.com).

Thanks again Roi – you’re a superstar!

Take care taking care people, I’m here if you need me.

Linda xox

24 responses to “Chronically Empowered Podcast”

  1. stockdalewolfe Avatar

    Thank you so very much for your kind, kind words. YOU are making a big difference. Might you talk sometime about losing friends because one can no longer socialize. I wrote three comments and lost them all and this at 3 AM with a horrific migraine. Sorry but a very busy day and I forgot all I said but your work is great! Thank you again!

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      I think they came through! And yes, I will write a post about being ghosted… it’s all too real! Hang in there lovely 💜

      Liked by 2 people

      1. stockdalewolfe Avatar

        ❤️

        Liked by 1 person

  2. Charli Dee Avatar

    Really awesome post Linda! Like Roi said, your positivity is infectious! I really admire it! I also really admire your determination to find answers on how to help yourself with your migraines. You’ve really done your research. I’ve been dealing with a chronic sinus problem since childhood. I’ve been to Ear, Nose and Throat doctors about it and I’ve been to an allergy specialist, but none could give answers. I’ve tried nasal sprays, but none of them work. Maybe it’s time I take your approach and instead of thinking nothing can be done I should be looking for alternatives. Thankyou for sharing this post! You are really inspiring!

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Yay! I’m not a doctor so I can’t begin to imagine what options might be available for your condition, but I feel like “nothing” is not the right answer. For me, the stories I told myself (and the stories behind those) were the most important thing to get started on. “I’ll never get better” was code for “I’m not worthy of healing”… once some of those narratives shifted, so did the pain. I’m super excited that you’re motivated, and would love for you to keep me updated on your progress! Xx

      Liked by 1 person

      1. Charli Dee Avatar

        I will definitely be keeping you updated! Right now I’m struggling with that frame of thinking that you mentioned. That there is nothing can be done, but like you said that’s not the answer. I think I might start by seeing if there are other people who are going through the same thing as me. I met a lady one time who has a child with a chronic runny nose. It was nice to met her and know I’m not alone. Unfortunately we lost contact and I can’t remember what she told me about how she handles her child’s condition. I should have written it down!

        Liked by 2 people

        1. The Mindful Migraine Blog Avatar

          I think “collecting evidence” that you can heal combined with a “support team” of similar patients is a great way to go – maybe there’s people online – maybe you can do a call out and be new team leader! (I get the bit about losing contact; it happens). As much as we like to think we’re unique, there’s almost always someone else going through something similar. Good luck finding your tribe xx

          Liked by 2 people

  3. Looking for the Light Avatar

    If you only said that, it’s enough. 🙂

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🥰

      Liked by 2 people

  4. Stella Reddy Avatar

    🌞 Linda, that was wonderful to watch. What a awesome video and you were very eloquent! Thank you for sharing. Yes, mindset is everything.
    I agree with you, you can’t force people to heal, but know your knowledge will be there for them to find when they are ready. Someday, it will “sprout” for others. Keep up your fantastic work!!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’m deeply moved that you watched, and I’m pleased you liked my garden analogy, I knew people like you would get it! 😘

      Liked by 2 people

      1. Stella Reddy Avatar

        Yes, I get it!! 🌞 It was a fantastic podcast and so informative. I greatly enjoyed it.

        Liked by 2 people

        1. The Mindful Migraine Blog Avatar

          🥰

          Liked by 2 people

          1. Stella Reddy Avatar

            🌞

            Liked by 1 person

  5.  Avatar
    Anonymous

    Thank you so much for what you said. Thank you for giving me hope that the creativity is not dead, as well as encouraging me to go on. I hope you will write some time about how migraines have really bad social repercussions from cancelled dates, etc. My migraines have cost me friends, and maybe this is worse, a feeling of being defective and inferior because I literally cannot stomach making a lunch date, for example. I know it is human nature but it still hurts. My retired husband and I were always homebodies but now we are very reclusive. I hardly go out. Not just the migraines– problems of old age also interfere. But you are so positive I don’t want to write a downer reply. THANK YOU BOTH for what you did and are doing!! Yay, you guys!!! Really!!!

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      No such thing as a downer reply; it’s just you being authentic – which is always welcome here! Migraines cost us so much, it is a cruel disease – but I’m not giving up, and I’m here for you if you need me. xx

      Liked by 1 person

  6.  Avatar
    Anonymous

    Oh, you are too generous!! You and your colleague are the heroes, talking about all this and sending people back to their lives with hope. It is a great thing you are doing!!! Really great!!! And thanks for the pep talk. Really I think I have lost all my creativity. I might add one thing that I am not sure about but I think might be true. Many times I have to cancel doctor appointments and social engagements at the last minute because of a migraine. People don’t understand at all or, if they do, it is very rare. I have lost some friends this way. I understand their lack of understanding but it still hurts. This has just made me and my husband angry and more isolated. We are both retired and too often are reclusive. To these “friends” it means I am too weak to tough it out, never mind if I feel like I will vomit at the thought of food, if it is for a lunch, say… or even doctor appointments. Some times I have pushed with not good consequences. I used to feel hurt and angry. Now I just say well maybe the friendship was not all I thought it was and I am detaching. Maybe you have some wisdom to share on that. But thank you, thank you for YOUR generosity and positive spirit!! And good luck on all you are doing– it may take you to great advances and experiences. I have every confidence you will go far.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh wow! I have so much to say in reply to the idea of becoming isolated from others who don’t understand. So much so that I’m going to write you a whole blog post about it! This is such a painful part of being ‘less than’ others that I used to believe, that I want to try and make us all see we are in fact ‘more than’ you could imagine. My heart genuinely skips a beat because my head is pulling me back towards my self-limiting beliefs and loneliness. Hang in there lovely- I’m so glad we crossed paths! Xx

      Liked by 1 person

  7. thingsihavethoughtof Avatar

    How beautiful is the end of the street, how lucky it exists… glad for you:-)

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh! You listened! 🥰 I have a lovely little park at the end of my street, so it always made the walk worth it. Thank you SO much for all your support, I feel so lucky our digital paths crossed! xx

      Liked by 1 person

      1. thingsihavethoughtof Avatar

        Yeah, I thought I’d listen to a minute or two cos I’m busy, but ended up staying for the whole thing. I can’t fully understand your pain but I think the discussion was a lesson in fighting inertia: Your pain (or sorrow) may never quite go away, but take control and you may just find the beauty at the end of your street.

        No need to thank me for anything, you’re the one doing all the work here! But yeah, nice to hitch along on your ride:-)

        Like

        1. The Mindful Migraine Blog Avatar

          Nicely put about the beauty at the end of the street – you turned my words into a metaphor… which I might just have to borrow back! 🙂

          Liked by 1 person

  8. stockdalewolfe Avatar

    I listened to this right now and found it comforting. Have a migraine now. The migraines are mitigated by CBN& CBD oil. Marijuana made me nauseous. I use a triptan, too but can’t take most meds. The migraines are pretty much every day. I try to push through. I wish I could get my neighbor to listen to you guys. Maybe a book would be good. I do mindful things and part of the day is pain-free. It is so hard for people to understand. I am also Bipolar and that was why I started my blog… to promote a book about my experience with mental illness. It has morphed into a photo and painting and nature essay blog from old work. No creativity now. The blog is going to morph again into a more spiritual blog with a Hindu bent and with painting and photography. But I can’t blog everyday like you. I can’t keep up with daily blogs very well.

    Anyhow very inspiring and I sent a link to a friend in Thailand. I am in the USA, panicking over what is going on in our country.

    A book would be great.

    Keep up the great work. The podcast was great. Thank you!🙏🏽

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      You’re amazing! Your resilience, your generosity, your creativity – and YES it IS still there; rest assured it shines out of your writing. I’m super excited about your next blog-pivot!! I think it is wonderful that you keep transforming – what better way to say “I’m alive” than “I’m evolving”!
      (Thank you for sharing the link – the more people it can reach, the more we might create the ripple effect of healing I’m so excited about – and don’t forget that by being here, commenting and helping your friend, you’re also part of that ripple – yay you!!) 💜

      Liked by 1 person

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