The face of (dis)ability

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OK, so the photo is accidentally very low resolution – and it’s not the most flattering image of me I’ve ever taken – but hopefully it gets my point across. 

People who are sick are also capable. 

A while ago I wrote a post about living with brain-fog and in response, Edward, a friend and fellow-blogger (here), suggested that I wear a t-shirt on the tough days to tell people (in a fun way) I was struggling.  I jumped online and there it was; “Today’s forecast is BRAIN FOG” – it even had a little logo for a fog-lamp which I had been writing about – woo-hoo! (thanks Edward!). 

About the same time as I was adding to my wardrobe, I also found out about the Sunflower initiative, where people with invisible disabilities wear a lanyard or pin, with the sunflower logo on it, to alert people to the fact that the wearer might need a little more time and support to navigate the situation (such as when you’re shopping, exploring a new place, or taking a trip on an airplane). 

As a person with chronic migraine, there are plenty of days when I need to ‘lean into’ the version of me that lives with an invisible disability. That’s the “bad part” of being me – living with chronic illness makes me slow and unsteady (sometimes).

On the upside of being me, however, there’s also plenty of “good things” underway. I write a blog, Monday through Friday, sharing my tips and tricks and hopefully helping a few people along the way.  [The mug in the picture has my healing mandala ‘logo’ on it – my daughters gave it to me for Mother’s Day earlier this year to show their support for my endeavors.] 

Oh, and that big stack of paper that I’m holding? It’s the first draft of my PhD dissertation.  4 years in the making and 98,000 words (too) long, I still have a way to go to get it down to something closer to 85,000 words, but I’m unbelievably proud that I have something to hold onto!

Here’s the full picture so you can see the lanyard and all…

So – my point is – people who are sick are also capable. We are often (un)productive, swinging between the polite lie of “I’m fine” and a genuine “great thanks”, one day after the other, sometimes even swinging between both moods on the SAME day.

People with a disability have plenty of ability!

If you know someone who lives with a chronic illness or chronic pain, help them celebrate their successes as they occur – I have no doubt that A LOT of effort has gone into making their dreams come true.

If YOU live with a chronic condition, know that I get you – somedays are so hard, no doubt about it… but on the days that are not terrible, keep going and keep growing, take those baby steps towards being the person you want to be… or being the amazing person you already are!

Now, before closing off for the week and wishing you all a wonderful weekend, I want to do a quick blog-shoutout to celebrate 7 months of blogging (yep, tomorrow will be the 17th again – which means it’s my blogging anniversary – boy how time flies!).  Here’s 11 blogs that I have come across in the last month that have piqued my curiosity and kept me reading and writing.

To help keep the fabulous communal spirit that is Blog-Land alive, click on any of the names below, meet a new blogger and leave a message on their post to say hello!:

Black Quill blog: blackquillblog – The writings of a Crow

Curiosities, Castles & Coffee shops: The musings of a curious mind

Couple of Words: Couple of Words – Not today …

Life with Charli: Even just a little inspiration goes a long way

Life target: Life target – exploring the right target of life

Love life with Dawna: Love Life with Dawna

Mood Verses: Mood Verses

Nutsrok: The humor and humanity of storytelling

Reunions and Secrets: Blog Posts – Reunions and Secrets Blog

Silk cords: Ramblings from the one and only Silk Cords

The Wild Pomegranate Tree: Reimagining the Hebrew bible with humane, healing, inclusive and joyful themes

Here’s cheers to everyone living their best life… however hard that living might be – hang in there – you’ve got this!

Take care, Linda x


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82 responses to “The face of (dis)ability”

  1. festo_sanjo Avatar

    I like one quote from a movie I watched, it was of a little teenage boy who was suffering from schizophrenia and her mom used to tell him, “you have an illness, but you aren’t an illness itself.” And that’s true all we call disabilities are just limitations, but who we truly are goes beyond any limitations..

    So much thanks Linda for Linking my site, I feel honoured. Loved your pic by the way, and you smiling ☺.

    Like

  2. Astrid's Words Avatar

    My life taught me that disability is only one aspect of my person. It’s a personal reminder to go slow and steady, and to touch base with the abilities I possess. We only appear disabled if focus is on that aspect, otherwise nobody knows unless we draw attention to it. It’s always up to us how we present it because it’s also viewed as a strength to have a disability.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I agree! It’s taken me a while to honor my disability and see the strength and resilience and creativity it has generated – for a long time I was ashamed of it as a ‘weakness’.

      Here’s hoping that people like you and me can help others lay down their guilt and shame and see themselves for the amazing beings they truly are! xx

      Liked by 1 person

  3. thingsihavethoughtof Avatar

    I was going to say, you look so brainy in this photo for some reason. Then you say you’re holding your PhD. Well done that woman!

    Congrats on at least getting that far, not long until it’s all done, Rob.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Fingers and toes crossed… submitting is probably the easy part, it’s being assessed and defending my position which will be tricky… hmmm… I wonder if I wore the Brain Fog shirt into my examination whether I would get some sort of dispensation… or whether it would just annoy any old fogies who are present…

      Liked by 1 person

      1. thingsihavethoughtof Avatar

        Yes, it’s interesting, because you are working under certain conditions which others don’t have to put up with, BUT … I would tend to keep as low a profile as possible, don’t give them any excuse! You are just as capable (and more) as everyone else, you don’t need their sympathy. You’ve come this far despite all that, these are the tests you have to pass. And you will!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          YES! Best Friend Forever level unlocked! (No seriously – thanks for the pep talk – it means a lot to me!)

          Liked by 1 person

          1. thingsihavethoughtof Avatar

            Awww, too nice! Sometimes (I think you know) I just blurt and think later. But you’re good, and you’ll get there on your own merit!

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              Blurt away – it’s considered “authentic” these days…!!

              Liked by 1 person

  4. Victoria Avatar

    Love, love, love your positivity and energy. And your photo? Making me smile, Linda! Cheers to those who celebrate successes every day – no matter how large or small – and those (like you) who recognize and champion the effort. xo! 🥰

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      THANK YOU! You always lift my spirits too – how wonderful that we are there for each other and still others more… it gives me hope for the future! xx

      Liked by 1 person

      1. Victoria Avatar

        🥰

        Liked by 1 person

  5. mchelsmusings Avatar

    I didn’t know about the sunflowers 🌻 thank you!!
    And you look fabulous!! 💜💜

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you lovely! 🥰

      Liked by 1 person

  6. joannerambling Avatar

    Having a hidden disability, sucks…………………

    Having a in your face disability also sucks…………..

    Having people think disability equals useless sucks as well ………….

    Ok it may take longer to get things done and yes that sucks, but if we can manage to do the task, let us if we need help we will ask, if you think we need help ask us don’t just step in a take over that can make us feel you are demeaning us, just my thoughts

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      The “taking over” thing really resonates with me today – I’m a grown up; I know how to ask for help when I need it… people’s intentions are often well meaning, but it is very disempowering… bottom line; it all sucks! (but we are super troopers who rise above the suckiness and make good regardless!)

      Liked by 1 person

  7. Dawna Avatar

    Hi Linda,

    Thank you for all the wonderful links to other blogs. I’ve subscribed to a couple. I appreciate you for sharing mine.

    Oh, and I think you look wonderful. You are a beautiful woman, inside and out and your photo is real and it’s you.

    I applaud you for posting a photo of your wonderful and unique self. I still struggle with that, but you are inspiring me. Hugs my friend and happy blogging.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you – you’re so lovely! I’ve never been very brave about my appearance (too many negative comments while growing up left their mark) – but I want to be as authentic as I can be – and that includes accepting I am who I am. Your compliments made me go back and look at the photo again – what I originally saw was a pot-belly and double-chin, but through your eyes I see a big smile and realize that’s more important – so a BIG thank you! Linda xx

      Liked by 1 person

      1. Dawna Avatar

        You are a beautiful person and I’m so glad you revisited your photo, Your smile lights up the room, or in my case, my screen. You are beautiful and unique, just the way He made you. Hugs to you my dear friend.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🙏❤️

          Like

  8. Edward Ortiz Avatar

    That shirt looks awesome. 👏🏼 Congratulations on all your accomplishments—a PhD is no easy feat. Good luck as you continue to refine your dissertation.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you Edward! The shirt gets lots of compliments, and a few comments like “where do I get one?” Thanks for the great idea! (loving the PhD process, but also looking forward to the finish line – hopefully around the end of the year!)

      Liked by 1 person

      1. Edward Ortiz Avatar

        You’re so welcome, my friend.

        Like

  9. Ernie 'Dawg' Avatar

    Congrats on the anniversary. The shirt is perfect by the way and what a journey 85,000 words, what a task. Great post.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you! Yes, it IS a lot of words… but not all of them necessary, but that’s what my task is now – refine, refine, refine! It’s been a journey which was harder than I imagined, but I wouldn’t change a thing! 🌞

      Liked by 1 person

      1. Ernie 'Dawg' Avatar

        Very cool.

        Liked by 1 person

  10. rsangel Avatar

    I love the photo, Linda – fun and more spontaneous than posing for it. Congrats on the PhD. I always find my “learn something new” on your blog. Thank you so much for the shout out. I really appreciate it.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh that’s my pleasure – I love visiting your blog (just need a few more hours in the day to come more often!) Super happy that you learn new things – I sometimes think that’s the ultimate meaning in life; learning & growing! Have a wonderful weekend – may the weather be wonderful! xx

      Liked by 1 person

  11. markbialczak Avatar

    Here’s to a wonderful weekend, Linda! Your fantastic photo captures you tackling life in your inimitable style. Cheers all around.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🤣yep – I’m slowly coming to accept that I am who I am – and that’s not such a bad thing! Best of weather for the weekend for you too – no doubt you’ll be out and about!

      Liked by 1 person

  12. moodverse907 Avatar

    I enjoyed learning from this post. You sure are a cutie 🥰. Love the shirt, the lanyard & the message of your post. Congratulations on 7 months on writing your blog and especially congrats on your PhD paper; I cannot fathom what went into that. I appreciate you mentioning my blog. On the days I feel semi-ok, I will work harder towards finding the good 👍🏻 I will check out all the blogs you posted here and thank you again- I love visiting your blog!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you – you’re always welcome – and I’m more than happy to share your words with others – here’s hoping that we get more good days than bad over the next few weeks and months! xox

      Liked by 1 person

  13. VJ Avatar

    Love the shirt! I just ordered a lanyard as my husband and I are going to attempt travel – the first after 5 years. Such a great idea.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Hooray! Let me know how it goes for you – I’m still a bit sheepish about wearing my lanyard – but I have heard it’s becoming very common for travelers – super happy for you that you’re off and about – enjoy!! xox

      Liked by 1 person

      1. VJ Avatar

        Thanks. I’m nervous but glad we are giving it a go.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          If it helps lift exposure, (and empathy), yay us! xx

          Liked by 1 person

          1. VJ Avatar

            Lol.

            Liked by 1 person

  14. Poetic Spirit Avatar

    Congrats, doing a super job!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you lovely – I can’t tell you how much you all lift my spirits and keep me going (especially on the tough days!) xx

      Liked by 1 person

  15. Mindful Mystic (MM) Avatar

    Happy blogversary and congrats on your dissertation draft! Love your mug, your shirt, and your smiling face. We each have our own mountains to climb and when the brain fog and spoon deficit hits, I feel like I’m climbing mountains just to muddle through mundane tasks. I have a spoonies shirt, but not the sunflower badge. Wonderful post on invisible disabilities. Thanks so much for the shout out. 🙏😍

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      You’re so welcome – I enjoy visiting your blog (just not enough hours in the day to pop over more often!) Here’s cheers for all that we get done with the spoons we’ve been gifted! L xx

      Liked by 1 person

  16.  Avatar
    Anonymous

    another comment. Thanks so much for the shoutout. I will checkout and follow each of these blogs if I don’t already know them!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      You’re super welcome! xx

      Like

  17. sedge808 Avatar

    I also had a friend who suggested I get a sunshine badge too because some days my PTSD is really bad.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’ve been a bit wimpy about wearing the lanyard – it’s VERY obvious – but I like the badge – it’s more discrete but hopefully understandable to the sorts of people that are going to help you. Like you said, some days are worse than others, and on those days I’m of the opinion “whatever helps” is a good thing. Fingers crossed the weekend is a good one for you! xx

      Liked by 1 person

      1. sedge808 Avatar

        I didn’t end up getting the sunshine thing because I thought kids would see it and larf at me. LOL

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Yeah there’s that… the world should be kind, but, meh, it’s not always… an old lady wearing a flowery-pin largely goes unnoticed… thankfully no pointy-fingers or funny-faces so far! Here’s hoping the PTSD stays quiet for a while and lets you get on with doing your thing! xx

          Liked by 1 person

          1. sedge808 Avatar

            I like the ‘thing’ part. Me LikE

            Liked by 1 person

  18. lbeth1950 Avatar

    Excellent points! Love the pic and the shirt!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you – the shirt gets a lot of reactions, mostly “where can I get one!”

      Like

  19. windupmyskirt Avatar

    Terrific post. Brain fog is no joke.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      AGREE! It is such an invisible issue, no one but my closest friends and family even notice the change in me when it happens… and even then, not always!

      Liked by 1 person

      1. windupmyskirt Avatar

        Exactly 💯 my hubby rarely notices either unless I’ve zoned out in the tub,and that’s only because it takes way longer for me to tell him it’s time to wash my hair.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Gosh! Zoning out in the tub sounds a little risky… lucky he’s on standby! Best wishes for the weekend – and may the weather be kind to you! xx

          Like

  20. Laura Avatar

    Love the picture of you! 😊 and what you say is so true, often we don’t have a choice, we have to trudge through the mud and just make it through the day, in pain or not, and it’s hard but we can’t always throw in the towel. It’s rough! I love your shirt as well 🙏

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thanks lovely – your “trudge through mud” description is (regrettably) the perfect way to describe it! Hope today’s as mud-free as possible, best wishes as always, Linda xox

      Liked by 1 person

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