My worst migraine ever

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Ok, so the details of this story are going to seem a bit jumbled… because in my mind they were a bit jumbled… because when you have a serious migraine attack, they are always a bit jumbled…

*

It was Easter time, and I had a bad migraine.  Not really shocking, but not great.  It was early in the morning, but I couldn’t stomach breakfast, so I went to bed… but the room was stinking hot and too bright.  I went to the TV room instead where the blinds do a better job of blocking out the sunshine and lay on the cool leatherette couch.  My husband said he would take the kids out for the day and go to the Easter Show.  I was grateful the house would be empty and quiet.  I vaguely remember waving goodbye from the couch.

Not long after they left, the migraine got a lot worse.  The medicine wasn’t working and I was struggling to walk from the couch to the bathroom, one half of my body felt like I had suffered a stroke.  I wasn’t scared… as someone with hemiplegic migraine, this had happened before.  The problem was, however, that each time I lay on the couch, the concrete roof above me would fall on my head, crushing my skull… no matter how many times I reached up, I was unable to push it away and free myself from the pressure…

I started to become distressed, I was struggling to breathe… I was being crushed after all… so I would stand up… limp to the bathroom where the roof wasn’t caving in… but then my legs would give way; I needed to rest… I crawled back to the couch… waited for the roof to collapse again.

Eventually some part of my mind decided I was dying; I needed to call for help.  I knew my family were overseas, so they couldn’t help, so I would have to call for an ambulance.  I have vague recollections of crawling around on the lounge room floor trying to call 911 on a TV remote control (although in Australia it’s 000).  No one answered my call.

I think that I wept in a ball on the floor until I fell into a coma-like-sleep.

When I woke up, an hour or ten later, the crushing sensation was gone.  I no longer felt like I was dying.  BUT something felt terribly wrong in my mouth.

About two days later, the migraine had lifted enough that I was able to drive myself to the dentist.  Even without an x-ray he was able to see that three of my teeth were broken. 

Because it was a week before Christmas, he advised me that he wouldn’t be able to do the three crowns before the office closed, so he placed metal bands around the three teeth to hold them together until the new year.

Over the next few months, at 3 hours a sitting, and several thousand dollars later, I had three crowns placed on my teeth.  By the third tooth I was jokily-complaining that I should have my own carpark in the basement beside his! He then made me a mouthguard to wear to bed at night to protect my new teeth, wished me well and cashed my checks.

*

Looking back, I can’t untangle the chicken-and-egg conundrum that was the pain of that day.  Was the migraine agony so bad that I broke three molars as I clenched my teeth and bit down against the pain?  Or was my biting down on my teeth increasing the pain in my head and making the migraine worse?  Or was it a doom-spiral of one leading to the other, increasing the other, making the other worse still…

One thing I do know… it was the worst migraine I have ever had; a 10 out of 10 on my pain-scale.

Since then, I still wear a mouthguard to bed – every night of the week AND every time I go to bed with a migraine attack – to protect the porcelain crowns I have, and my other natural teeth from further damage.

What’s telling about the attack, (from my curious point of view anyway), is how much of a mess there was in the details.  How did Christmas become Easter?  Why was the bedroom already stinking hot at breakfast time? How did my kids going to a local show send them overseas?  Why was a TV remote control mistaken for a phone?  Why call 911 not 000?  Why was I convinced I was being crushed to death when I lay down, yet capable to seek refuge by walking into another room?

Without sounding silly about it, I would have stood before a judge and sworn on the Bible that these were the truths, the whole truths, and nothing but the truths of the event… until I realized they weren’t.

A migraine is NOT just a bad headache – it is a neurological condition that unleashes a storm of cascading chaos throughout your brain and body… it’s not fun and it’s not pretty… and sometimes (sigh) it ‘aint cheap… even if all you do is “lie around all day”.

If you get migraines – I see you – and I’m sorry – write to me if you want a shoulder to digitally cry on.

If you don’t – here’s hoping you never do… but if you do… consider purchasing a mouthguard!

Take care taking care, Linda xx


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43 responses to “My worst migraine ever”

  1. Trapped in migraine postdrome – The Mindful Migraine Avatar

    […] a couple of posts describing my first and worst […]

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  2. ‘Everyday’ trauma and your pain brain – The Mindful Migraine Avatar

    […] I broke three teeth during the worst migraine I ever had (here) – the first crown that was installed was an extremely traumatic 3+ hour event for me. I […]

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  3. ZeroSpace Avatar

    I don’t get migranes but jeez all this sounds awful. I hope they come up with a miracle cure or at least something consistently effective and more reliable for yourself and all the people who deal with this.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      It is very miserable – what’s hard to imagine is that there are 1 billion people who get migraines… but it’s just not considered a priority when it comes to research… we’ll get there though – there’s enough of us starting to really speak out about what life is like, and why we need a cure so badly! Thanks for popping by, and here’s hoping 2025 is as pain-free as possible! Linda xx

      Liked by 1 person

  4.  Avatar
    Anonymous

    you’re a great one

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thanks ⭐️

      Like

  5. joannerambling Avatar

    Migraines are far from just a bad headache but sadly that is how many people think a migraine is a bad headache, it isn’t just about the pain which is horrible but the other things that go with having a migraine.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Hopefully if I keep going on about it often enough, people might come to understand it better! xox

      Like

  6. SiriusSea Avatar

    I’m so sorry you’ve been living with these agonizing and excruciating headaches and greatly appreciate the shedding of much needed light (pun not intended) on the subject … Years ago got the mouthguard for the very same issue but won’t lie … when finding that sucker under the covers at the bottom of the bed is baffling!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I was always terrified I would choke on my mouthguard in my sleep… so far it has never happened…!!

      Liked by 1 person

  7. Mary K. Doyle Avatar

    Ugh! I’m sorry you had to go through this. Do you know what triggers your migraines? Lights, food allergies/sensitivities, hormones, stress?

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Hormones, stress, weather are my big three – that’s where mindfulness helps a little. hoping menopause is not too far away and that will help too. Thankful that these really bad ones are few and far between! xox

      Liked by 1 person

  8. markbialczak Avatar

    The brain holds so many mysteries, Linda.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Mysteries or blank spaces… I seem to have a combination of both! 🤣💕

      Liked by 1 person

  9. festo_sanjo Avatar

    I’m so sorry, Linda… I think the experience made you strong and even helped you overcome other migraine attacks.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      That’s how I look at it – like we were talking about the other day; these stumbles and trips and falls, all help us build up our resilience! xox

      Liked by 1 person

      1. festo_sanjo Avatar

        Yes, they’re all necessary, and they shape us into more resilient and enlightened beings.

        Liked by 1 person

  10. silverapplequeen Avatar

    Well ~ I’m 64 years old, going to be 65 in 2025 & I haven’t broken any teeth during a migraine & I would bet the house that it’s never going to happen. So I’ll pass on the mouthguard. LOL

    I broke my front tooth when I was 20 when I was carrying wood to the fireplace at my family’s house & the top piece fell into my face & broke my nose, my front tooth & bruised me up pretty bad. My dentist did a “bonding” for the tooth but that quick fix fell out a year later & my then-fiance’s dentist put in a crown ~ a gold tooth ~ that was $800 in 1982. I didn’t have any health insurance in those days, so it was $800 out of pocket. I was a dancer & it took me a month to pay off that tooth.

    BTW, back in those days, smoking in bars was allowed & that was the main trigger for my migraines & I had migraines ALL THE TIME.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Gosh how the world has changed in terms of smoking – I remember flying from Sydney to London in the non-smoking section of a plane – we were set apart from the smokers by a curtain that did diddly-squat at keeping the smoke out… I was 17 years old and I’m pretty sure that I smoked 3 packets worth of passive smoke that trip!!

      Liked by 1 person

      1. silverapplequeen Avatar

        I think of all the smoking I did just being in bars & restaurants & other places that allowed smoking back in the day. I don’t allow anyone to smoke in my house AT ALL. People think I’m being unreasonable but the merest smell of a cigarette gives me a migraine.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          In Australia smoking is being replaced by vapes – now everyone hanging outside their office blocks smells like cinnamon-candy-apples!?! 🙃

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  11. odylicious (Val) Avatar

    Just wow! I really feel for you and I’m so glad that hasn’t happened again since. (Knock on wood). The worst migraine I ever had that was atypical happened after getting a lumbar puncture and they didn’t have me lay flat very long. Never explained I should lay down after I went home. By early morning, I was in agony as bad as natural childbirth with a spinal headache. I couldn’t even bear to be upright, and lay down in my mom’s car on the way to the ER with a barf bag.

    I was in the hospital for 5 days with it and never want to do another lumbar puncture AKA . All just to prove I didn’t have pseudotumor cerebri for a neuro after telling my primary I couldn’t stand my migraines any more. They threatened to send me to the booby hatch unless I agreed to try their neurologist. What a mistake. I’m careful what I say now.

    Here’s hoping for more pain-free days for us all in the new year!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thanks – and for you too! May we never go through unnecessary medical procedures again! xox

      Liked by 1 person

  12. Sheila Avatar

    Sounds terrible, Linda. During and afterwards. One of my worst ones was the first one. I didn’t know what was happening which probably made it worse. I went to the Emergency room thinking I was having a brain aneurysm. I’m in the single public bathroom on the floor getting sick in the toilet and I’m a germophobe! They gave me morphine and it didn’t help AT ALL. Just made me lightheaded and dizzy. Crazy what this disease can inflict upon us. Thanks for spreading awareness about it.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh no, that’s a bad first migraine… I’m surprised the morphine didn’t help (I thought it was a heavy duty painkiller)… that time spent on the bathroom floor is all too familiar- it is NOT somewhere you want to be, but sometimes it’s too hard to be anywhere else! 💜

      Liked by 1 person

  13. sedge808 Avatar

    OMG the word Hell comes to mind.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Luckily it hasn’t been that bad since! I think the dentist on loop was worse in some ways!

      Liked by 1 person

  14. Willie Torres Jr. Avatar
    Willie Torres Jr.

    Wow, what an incredibly intense and emotional experience. I can’t even imagine how overwhelming it must have been to go through that pain and confusion. I hope you continue to find ways to manage and feel better. Will definitely be Praying for you.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you for your kind words; you always make me feel better 💜

      Liked by 1 person

      1. Willie Torres Jr. Avatar
        Willie Torres Jr.

        🤗🤗

        Liked by 1 person

  15. stockdalewolfe Avatar

    Linda, I am so sorry you had to go through an experience like that. I would love to send your story to every person who thinks a migraine is just a headache and why should it keep you inside or lying down or home from work, Etc. Etc. Etc. Thanks for all you do for migraineurs!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My pleasure… if that’s the right word!! It’s heartbreaking to think so many people have similar experiences and still there is so much confusion surrounding the issue!! 💜

      Liked by 1 person

      1. stockdalewolfe Avatar

        ❤️

        Liked by 1 person

  16. Danny*Fantod Avatar

    Scary. I feel for you.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Not fun… but thankfully rare! Thanks for dropping by!!

      Liked by 1 person

  17. Johnbritto Kurusumuthu Avatar

    Linda, your story is both harrowing and deeply moving. You’ve captured the chaotic reality of living with migraines in a way that’s raw and relatable, shedding light on an often misunderstood condition. Your resilience in navigating such overwhelming pain and the aftermath is truly inspiring. Thank you for sharing your journey so vulnerably—it’s a powerful reminder of the strength required to endure and adapt. Your advice about the mouthguard is practical and thoughtful, and your offer of support to others is incredibly kind. Keep writing and sharing your voice—it makes a difference!🤝👏🌷

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh thank you! There are so many people living with this illness, I’m always surprised not many others know about how bad it is and that there is often so little support! Xx

      Liked by 1 person

      1. Johnbritto Kurusumuthu Avatar

        👏🎉🌷

        Liked by 1 person

  18. Sara Allwright Avatar

    Awful….migraines are unbearable, and you express the sheer agony of it beautifully!

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      They’re not fun at all… but thankfully the really shocking ones aren’t too frequent any more… L xx

      Liked by 1 person

  19. macalder02 Avatar

    I had already read you about the severity of your migraines but this event breaks the mold. You can say that it is a terrifying story, to say the least. Hopefully now you have everything under control so that you don’t go through that terrible moment again.

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      It really was bad… but I am thankful that it was an out of the ordinary event for me, as you say – thank you as always for being here! Linda xx

      Liked by 1 person

      1. macalder02 Avatar

        You are welcome Linda,
        Manuel

        Liked by 1 person

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