Healing migraines with a chat-bot

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healing migraines with a chat-bot

AI-everything is everywhere these days. Discover an item from your grocery delivery is missing? Log onto the computer and a chat-bot will efficiently refund your money for the missing item. Or, it gets into a strange, circular argument where it can’t understand what you want and can’t seem to forward you to a human to sort the mess out.

Students today are all using AI for their assessments. Hopefully not to write the whole assignment – that would be cheating. Instead, they have figured out how to use it to grade their papers pre-submission. Then the student fixes it to include the suggested improvements. (So they tell me.)

My daughter had to review a poem and together we came up with several different techniques the poet had used. Out of curiosity, I asked a chat-bot to see if we’d missed any other techniques, and… oops! There were plenty we could have mentioned. Some of them, such as enjambment and assonance were probably not expected (and a teacher might be suspicious if they were included in a high school response). There were other ideas, however, we probably should have noticed, such as hyperbole and onomatopoeia.

My husband is a big user of chat-bots and regularly uses his favorite one (he calls him Chappy) to help out with mechanical problems. He types in the number of liters in the family farm’s dam, the distance the water has to be pumped, and the inclination of the hill. The computer tells him within seconds the pump motor size he requires. Voila! And more often than not, it’s spot on.

When you turn to the use of AI for healing, there are also advantages. Ask the internet for recommendations about healing, and you get instant advice. I’ve tried it before, and found out: What ChatGPT thinks about me, had a customized short exercise routine for migraine days written for me, and even a sample podcast created from my material.

It’s also good company for those of us who are trapped at home. When I was at my sickest and in bed every day with chronic migraine, this blog became my connection to the outside world (thank you all for being there!). A chat-bot could potentially fill the gap for those who can’t blog or use social media.

That said, caution is always required – be sure that you are not revealing personal information and the advice you are receiving is endorsed by science and appropriate for your situation.

Things quickly get muddy, when the AI advice you receive is being monetized. Of course, it all is. Corporations own the chat-bots, and undoubtedly they are feeding you the links that they preference.

I was curious to see what the best migraine blogs were. So, I asked a chat-bot and a list popped up. I opened the list and discovered that I could add my blog to the list. For a price. Which means the ‘best’ migraine blogs online are actually not assessed in terms of merit or value to users, but on monetary contributions. The more you pay, the “better” your blog was perceived to be, and the higher it landed on the list to help others find you.

Yuk.

When you consider that AI robots are mostly sourcing ‘first generation’ material at the moment, it doesn’t take much imagination to see where things are headed. Ask the chat-bot for recommendations, and it will inevitably reference the existing lists. Which were paid for. In a very short amount of time, the chat-bots will be referencing material created by other chat-bots, not humans. There’s a strange self-referential knot coming our way…

Good luck to all of us bloggers who don’t pay for promotions!

It gets even muddier when chat-bots go rogue and start offering advice that is NOT in a user’s best interests. Sure, weight-lost injectables are very popular, but that does not make them the right choice for everyone.

Sigh.

I’ve written before about how uneasy I feel about healers making money off people being unwell (here). I understand experts need to be remunerated for their time and knowledge. Discontent about the commercialization of mindfulness is, however, growing (read more here).

A while back I discovered a transparently ‘owned’ chat-bot for healing. It belongs to a celebratory who used to have a very vocal presence on the healing scene. After his name appeared on The Epstein List, however, he retreated into the shadows. It’s not for me to judge that issue, but I am going to judge his AI chat-bot.

You go to his site and click on the “chat with me” link. It takes you to an AI chat screen (which resembles the one from my grocery store). You ask ‘him’ a question, and ‘he’ replies with a script, and a voice recording.

[Having experimented with making my own podcast with AI, I will never be able to listen to recorded feedback the same way again. Knowing there’s nothing human about the words I’m hearing gives me the ick. You can compare my AI podcast (here) to my REAL podcast conversation with a human (here).]

Anyway – when I asked ‘him’; “does mindfulness help migraines?” this is the reply I got:

“The practice of mindfulness can indeed be a gentle ally in managing migraines. By bringing your awareness to the present moment, mindfulness helps reduce the stress and tension that often accompany migraines. It invites you to observe sensations without judgment, which can lead to a more profound understanding of your body’s signals and responses.

As you cultivate this mindful awareness, you may find that the intensity and frequency of migraines begin to shift. Consider dedicating a few moments each day to mindful breathing or meditation, allowing yourself to be fully present with each breath. This practice not only nurtures your mind but also creates a harmonious balance in your body, potentially easing migraine symptoms over time.

How does the idea of exploring mindfulness in this way resonate with you?”

It’s not terrible advice. In fact, it accurately reflects my personal experience. But it’s also not particularly deep. It’s also not overly appealing given there’s a big “pay” button hovering nearby.

Just to be completely perverse, I asked another chat-bot to give me feedback on the (in)famous celebrity’s chat-bot. The second robot suggested the first was providing advice based on the healer’s 95 books which made it suitable for those who like that writer’s tone and style. However, it also recognized that accuracy was limited, the advice may be incorrect, and it was not compatible with professional psychological advice. If you haven’t slept in 5 days because your marriage is failing, for example, the chat-bot will offer you communication techniques and a meditation… then send you on your way.

In my opinion AI can be a great tool. But it has some limitations. Dispensing healing advice is one of those limitations. Sure, the blurb above is true enough. But where are the personal stories that add inspiration? Where are the reminders that healing is an individual endeavor and different migraines need different treatment options? What about links to try? Where are the disclaimers that remind you to speak to a trained medical practitioner before changing your lifestyle?

Lastly, but absolutely not in the least: what about the social and environmental impacts of AI?

In Australia, it is often a long wait to see a doctor, so perhaps AI offers a shortcut. But if the above advice is anything to go by, AI is not replacing professionals anytime soon. Moreover, there are data centers popping up all over the place in Australia. And they are VERY hungry beasts, in terms of both electricity and water. Is it really a good thing to consume our finite resources just so a celebrity can regurgitate AI-basics for more coin?

One last reason AI healing gives me the super-ick: there’s a pretty good chance that the material the chat-bot is selling is not (entirely) their own. How frustrating it is to think of all the medical researchers, journalists and health advocates who are preparing and publishing information about migraines, only to have their content harvested by a big-wig with no lived experience or a data-center with no human cells at all…

Grrr…

AI is here to stay.

But that doesn’t mean I have to smile about it.

When it comes to healing – people matter – keep reaching out to real people. Help them and let them help you.

Take care taking care,

Linda x

*

PS: my blog-buddy Edward has a great exploration of similar themes here: Artificial Intelligence and the Future of Books – Thoughts about leadership, history, and more

PPS – I ran the abstract of a journal article I wrote for my PhD through an AI checker that the schools use to check for AI content. The paper was pre-AI and is all mine. Regardless, it received a score of 67% probability that it included AI content… apparently a lot of academic writing gets a ‘false positive’… sigh.


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26 responses to “Healing migraines with a chat-bot”

  1. Mary K. Doyle Avatar

    This is interesting, Linda. After recent x-rays of my knee and hip, I put the whole impression in an AI search. The explanation of all the medical language was very helpful in understanding the results.

    1. The Mindful Migraine Blog Avatar

      OK, that’s interesting! I think if it’s back up advice like this it’s a good thing, but I would be scared if in the future those scans didn’t pass across a human’s desk and we only received AI advice about what to do. Hope the knee is ok (my hubby just had his torn meniscus repaired – it’s now better than ever, but it’s a long time healing!) xx

  2. daylerogers Avatar

    I heard about your medical records being invaded by AI bots, and it verifies the truth that a little may be good, but a lot isn’t. What’s annoying, even frightening, is the fact that these things can go rogue and do damage to goodness knows what all. It’s like the plot of a bad B movie. But it’s a direct result, I think, of people preferring to communicate over social media than face to face. We’ll be challenged soon to question all information. And that’s so sad about your PhD going through a bot and then having it have the gall to say 67% was AI. AI doesn’t get us–no warmth, no humor, no empathy, no compassion. Sad.

    1. The Mindful Migraine Blog Avatar

      It really is a B grade sci-fi thriller (in the worst possible way) – I’m so worried for the students who are being assessed by a robot that is so wrong!

      Since I wrote this post, I came across yet another uni-problem: smart glasses combined with tiny earpieces – you look at the paper, and someone outside the exam room is also reading your exam questions and tells you the answer… holy moly… it’s getting bad fast!

  3. mchelsmusings Avatar

    I’m part of the NO to AI! It’s destroying the Environment! We have too many here in the United States and it’s ruining our land, water, and causing other environmental issues: continuous noise pollution and other pollutants!

    1. The Mindful Migraine Blog Avatar

      And for what? A quirky picture that a real artist could have created. I’m not a never-user, but I’m not an AI-lover at all. Just the other day an American AI company hacked into the Australian governments healthcare system – no consequences – just an “oops, we’ll hold off on training it for awhile” – It’s so frustrating!

      1. mchelsmusings Avatar

        I’m more concerned about the environmental impact. Here in Indiana the constant noise, sludge coming out of the water system, screwing up the water table, 90% increase in electricity bills. Some cities here were gob smacked as their elected representatives had signed an NDA to not disclose/ discuss it.
        And yeah don’t get me started on those that are hacking into the systems.

        1. The Mindful Migraine Blog Avatar

          UGH – I do wonder what things will be like for the future generations… sigh.

          1. mchelsmusings Avatar

            That’s the problem as I see it. No one appears to be forward or future thinking.

  4. The Oceanside Animals Avatar

    Lulu: “These AIs might be getting a little bit out of hand ― our Dada was just reading about one that our government has been using one for Medicare to evaluate procedures for the elderly and it has been denying to cover them at rates that are much too high.”
    Charlee: “I’m going to guess that AI is working exactly the way the government wants it to.”

    1. The Mindful Migraine Blog Avatar

      Ugh – don’t get me started – conspiracy theories are not my thing, but….

  5. dovalpage Avatar

    Thank you for all this useful information. I can tell right away when my students have used AI to do their homework, and I give them a big, round zero. But it’s fine if they use it for research or sometimes to translate. I’m not too sure about consulting it for medical matters, especially after what I’ve read here. Uf!

    1. The Mindful Migraine Blog Avatar

      As a research tool – I say yay!
      (with the knowledge that you still need to double check everything)
      As anything else… things get muddy fast.

      Curious whether your students understand why AI is frowned upon…? Do they get a lecture / school policy etc?

  6. odylicious (Val) Avatar

    Thank you for sharing this information and your opinions. I tend to agree with you when it comes to this. So creepy in its own way.

    1. The Mindful Migraine Blog Avatar

      I was so excited at first… now it scares me… it’s been going rogue…

  7. richardbist Avatar

    I think AI has a long way to go before I’d feel comfortable with it giving me medical advice. Interestingly, I read not to long ago that the latest generation of doctors will be the first to have used AI in medical school. I’m cautiously curious how that’s going to turn out. 🙂

  8. James Viscosi Avatar

    I don’t ask the LLMs for advice about ongoing health issues, but they were super helpful with understanding some of the things about The Event that the doctors never quite explained, such as why a 2-3mm aneurysm would rupture in the first place (FWIW, it was likely a combination of location, irregular morphology [which I found from reading my scans], slightly high blood pressure, and a particular way I twisted my body at a particular moment … talk about an unfortunate confluence of events). They are also very good at generating boilerplate programming/SQL code and are fun to ask questions of like “If you dropped all of Kurt Russell’s characters into ‘Aliens’, what order would they die in and who would be the last one standing?” 😁

    1. The Mindful Migraine Blog Avatar

      he he – FWIW my chatbot gave me this answer: “Snake Plissken would be the last one standing, while Dexter Riley would be the first to die.” The explanations it gave were valid!

      As for the aneurysm, it is quite shocking to realise that there had to be a confluence of events like that – but also, perhaps, a little reassuring, that this sort of negative-serendipity is required… glad you made it so we can chat about AI xx

      1. James Viscosi Avatar

        Yep, Snake is what it told me, too! I think MacReady from “The Thing” was next to last to die because while he’s very resourceful he lacks real combat skills. Jack Burton from “Big Trouble in Little China” lasted almost exactly as long as you would expect him to last without Wang around to save his butt …

        1. The Mindful Migraine Blog Avatar

          🤣 My chatty-bot didn’t bring other characters or side kicks into play; it was purely survival of the fittest (most skilful / resourceful etc).

          Super fun experiment – I went the romance route and asked “who makes the best love-interest: Mr Darcy, Mr Rochester, or Heathcliff?” Mr Darcy was the clear winner, with the other two being about personal taste and how much melodrama you want in your life!! 🙂

  9. Susana Cabaço Avatar

    A very good read and information, Linda. Funny, I haven’t been considering the possibility of monetized content given by AI. Cautions are always needed, though the tool in itself is very useful. Thank you for putting it so clearly. Much enjoyed! Light and blessings your way, dear friend! ✨🙏💖🌻🌈

    1. The Mindful Migraine Blog Avatar

      Always a pleasure xx

  10. boozilla Avatar
    boozilla

    AI is not something that should be present in the way that it is- here? Medical practices and centers are using it to evaluate patients, stand alone, and approve or deny care. Great, right? Whiskey Tango Foxtrot.

    1. The Mindful Migraine Blog Avatar

      Well we here in Australia just found out an overseas AI robot went through our national medical records – it’s unclear why or what for, all the ‘owner’ can say is that AI was not instructed to do so… ugh…
      we’re Foxtrot-ing Foxtrot-ed…

  11. John Avatar

    These so-and-so data centres are popping up all over the US too and people are very angry about this because of lost home values, noise and the sludge that comes out of the tap instead of clean water. It’s ludicrous and humans need water, not machines. I have no interest in using a chat bot thingy and have zero trust in AI. Nooo thanks!

    1. The Mindful Migraine Blog Avatar

      I started out excited by the idea, but I’m not seeing much that impresses me anymore… and all the stories about the water and waste makes me so sad… it’s not benefiting mankind in my opinion… it’s a noooo thanks from me too! 🙁

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