Botox for migraines

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Tomorrow is my next round of Botox with my neurologist, and I have a confession to make; I have a terrible phobia of needles.  I’m also not a fan of deliberately putting toxins into my body.  I probably also harbor deep-seated schoolyard angst towards ‘beauty queens’ and the notion of cosmetic procedures.  For all of these reasons, I was very resistant to the idea of getting ‘botulinum toxin’ (or Botox) injections for my chronic migraine.  After reaching a point where I felt there were no other options left, however, and my chronic migraines were just not budging, I agreed to go ahead with Botox about a year ago. 

For me, Botox seems to have worked.  It hasn’t eliminated the migraines, but appears to have reduced their frequency, duration and severity.

Botox for migraines requires around 31 injections every 3 months.  The needles (from what I can tell without looking too closely) are bigger than acupuncture needles but smaller than vaccination needles, and nothing like the blood-donation variety – ugh.  They are inserted into your forehead, temples, the back of your neck and shoulders.  As part of the process, (in Australia) you keep a migraine journal for the first few months, to track your pain and ‘prove’ that the Botox is making an improvement.

(Image source: Botox For Migraine: Everything You Need To Know)

I’m going to let you in on a little secret that the other websites don’t mention – when the neurologist tells you “it doesn’t hurt”, they’re probably right in terms of ‘normal’ people, but given that there are days when it hurts to brush my hair, I’d be more honest and tell you: “it hurts a little bit”.  Not terribly, however, and not enough that I’d stop going.  As squeamish as I am, it’s all over in a few minutes.

Whilst the needles are not overly painful, getting Botox can still be a bit unpleasant.  I sometimes think I can hear the needles breaking the skin near my ear and I have to resist the urge to cry. Deep breathing or chatting to the doctor helps. Sometimes I feel a bit ‘woozy’ for the rest of the day. I usually get a lift home from the clinic with my husband or catch the train home rather than drive, ‘just in case’, but others say they feel fine to drive. It’s completely possible that some of my reaction is the result of the idea of the needles, rather than any real reaction to the medicine. 

Probably the worst real-life side-effect is that on the first evening after the injections you can’t find a comfortable way to lay your head on a pillow.  Both sides and the back of your head all have sore spots where the needles went in.  Occasionally I can feel a little scab forming and the location gets itchy.  Within a week, however, it would be difficult to tell you exactly where the needles were inserted.

I’ve collected anecdotal evidence from other people in the waiting room that they can feel the benefits of the Botox ‘wearing off’ as they get closer to their 12-week renewal.  I remember feeling a bit that way at the end of the first 3-month period (waiting for injection Round Two), but I didn’t feel anything like ‘withdrawal’ or an ‘impatience’ this time around (Round Six).

Because I started Botox at the same time as I started my holistic healing journey, (doing Tai Chi, meditation etc.) I can’t say conclusively that Botox is the main or only reason I feel better.  I also can’t know if I stopped getting the Botox whether my bad migraines would come back.  My FOMU (fear of messing up) means I’m not prepared to try it and find out… yet. 

In terms of a long-term vision, my preference would be to keep going with all the other mindfulness practices, and hopefully one day, maybe next year, move the injections further apart, and then eventually phase them out.

[Disclaimer: Only you and your doctor can decide what’s right in your circumstance, so be sure to seek healthcare advice from a professional before making any changes to your lifestyle or migraine management approach.]

Good luck with finding your ‘right way’.

Take care, Linda x.

PS – In addition to the picture source-site above, here’s some links if you’re interested in more scientific descriptions of Botox for migraines:

Botox For Migraine – Migraine & Headache Australia

Botox for Migraines: Side Effects You Should Know About (healthline.com)

PPS – I’m super excited to say that I got interviewed by the Blog RTS Mental Health. Please pop on over if you’re curious to know a bit more about me, including my childhood fear of trees (sort of): Interview – The Mindful Migraine


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22 responses to “Botox for migraines”

  1. Jo ~ O! Avatar

    Divorcing my ex and really letting go of his manipulation got rid of a lot of my headaches with projectile vomiting way back when. The headaches were unrelenting but so was he! It’s amazing what stress causes. Glad you’re doing better with frequency. 🙂

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Ah yes…. “toxic people stress”… I hear you. I’m fortunate enough my husband isn’t a contributing factor (sorry that yours was) but the issue is real, and they really do create a vice-like clamp on your head when you’re around them. Here’s hoping that the last of your headaches abates soon and you experience mountains of joy in their place. xox

      Like

  2. Oluwaseun Oye Avatar

    I know the feeling. Migraine puts everything on hold.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh no! Not you too! I hope yours are only occasional… they really are horrible! Xox

      Liked by 1 person

      1. Oluwaseun Oye Avatar

        Me too, but they are not as frequent.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Thank goodness! Well, know that you’re not alone, we’re all here with you, trying to shift from “team migraine” to “team mindful”. Take care, you’re always we,come here, Linda xx

          Liked by 1 person

  3. Sheila Avatar

    I am so glad Botox is helping you! Unfortunately it did not make a difference for me years ago when I tried it. None of the injectables did either. My latest attempt is trying a low histamine diet because mast cell activation syndrome (MCAS) has migraine as a common symptom. Fingers crossed

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      I’ve got all my fingers and toes crossed for you lovely – here’s hoping it works. Just remember, they’re inventing new things all the time – so keep testing the options. A lot of the diet options sound promising too. Good luck! xox

      Liked by 2 people

  4. mchelsmusings Avatar

    I’ll read but I have a problem putting botulism (poison) in me on purpose. Plus, I’m not paying out of pocket. The VA does not offer this treatment. My migraines are severe but I don’t know… thank you for the information though. More than I’ve heard before.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I think the money is a big issue. I remain bemused how tiny vials of liquid could be worth so much. I am lucky enough to be ‘covered’ by insurance, but still have ‘out of pocket’ expenses. Here’s hoping that the option is one day available to everyone who wants it. xox

      Liked by 2 people

      1. mchelsmusings Avatar

        On that we agree. 😊

        Liked by 2 people

        1. The Mindful Migraine Blog Avatar

          On the upside, I feel like I found a friend given that we seem to agree on a lot of things 🥰

          Liked by 2 people

          1. mchelsmusings Avatar

            It is refreshing and awesome!
            🤩 Hi friend

            Liked by 2 people

            1. The Mindful Migraine Blog Avatar

              😻

              Liked by 2 people

  5. joannerambling Avatar

    If the medication I take for Parkinson’s didn’t stop my jaw moving my neurologist suggested Botox to settle it but thankfully the medication has work as I wasn’t keen on Botox but would had tried it if the medication didn’t work

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Never say never is my new mantra. Have preferences, for sure, but stay open to all options. Xox

      Liked by 2 people

  6. stockdalewolfe Avatar

    Thanks for writing about Botox. I have not tried it for all the reasons you don’t like it and then some. Your blog is so informative. Thank you. 🙏🏽 P.S. what is the link to the mental health blog that posted your article?

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      You’re really welcome, I don’t know why it took me so long to get around to writing about it. I think all the reservations are real, but I also think that it has helped me a lot and sometimes I wish I’d started sooner. ❤️ (Try this link for the interview which will then get you to the whole blog: https://rtsmentalhealth.com/2024/05/10/interview-the-mindful-migraine/)

      Liked by 2 people

      1. stockdalewolfe Avatar

        Thank you very much!

        Liked by 2 people

        1. The Mindful Migraine Blog Avatar

          ❤️

          Liked by 2 people

  7. Christine aka stine1 Avatar

    I have heard of this before and a friend of mine did this to have less migraines. It does work for her, but it is too expensive to do this 4 times per year 😦

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      The costs vary from country to country – it is a real shame that such a life-changing medication can’t be more affordable… how such a tiny bottle of liquid could cost so much, I don’t know! Here’s hoping things change in the near future. xox

      Liked by 1 person

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