“I have a migraine” is NOT a lie

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When I was in my 20s, I worked in the headquarters of a large Australian retail company, project managing the construction of their stores across the country.  It was a great job, because I got flown around Australia, and OK, I wasn’t in holiday mode, but I got to see every state of Australia (except Tasmania).  It was also NOT a great job, in the sense that there were a lot of moving parts to my role, and they moved quickly.  At that time, however, I was a perfectionist who not only managed the high workload, I thrived in the stressful environment.  Very rarely, I experienced a migraine attack. 

There was one day, however, when I got one at work.  I was sitting at my desk, looking out the window, when a large truck drove past and in a weird moment of negative-serendipity, the sparkly-doo-dad that was hanging from the rearview mirror spun around and caught the sun’s rays and reflected it back with laser-like intensity straight into my eye.  The pain was intense, and I knew in an instant – I was going to get a migraine.

I wrote my name and home address on a piece of paper and asked one of the secretaries (they were a big thing back then) to call me a taxi-cab. I needed to go home – pronto!  My boss caught wind of it and as we headed for the front door, and noticed that the way I walked had already changed, and I was struggling to get my words out.  I mumbled to him, “please tell the driver I’m not drunk or on drugs, I just have a migraine – make sure he takes me home”. 

[I had previously been denied a lift by another cab-driver who assumed the worst of me, and even went so far as to give me a “shame on you” lecture because it was only 10am in the morning.]

I made it home that day, slept it off, and was back at work a couple of days later.  Back then, my migraine pain-scale often went from 0 to 7+ in a few minutes and my migraines lasted the ‘typical’ 72 hours.

At the same office, there was a receptionist at the front counter who would have been in her 50s (the same age as me now – but – twice my age back then (and as such, she was, “positively ancient”!)).  I remember her being a super-efficient ‘machine’ – she was always taking phone calls, typing letters, accepting deliveries, rarely coming out from behind her desk, never seemingly working up a sweat, and most importantly, always smiling (a potentially fixed-in-place smile, but a smile nonetheless.)

One day, as I walked past this receptionist, she looked uncommonly glum.  I stopped to ask her if she was ok.  She shook her head and replied, “I have a migraine.”

I’m ashamed to admit it – but my first thought, in big, bold, flashing, neon-colored lights, was: “LIAR!”

When I had a migraine (back then), walking and talking were a struggle, as I mentioned above.  All my effort went into staying upright and not throwing up on myself.  There was ZERO chance that I could work at a public reception counter and have a migraine at the same time… Z-E-R-O.

Being a bratty 20-something year old, I decided to call the crazy old lady’s bluff.  I told her I also got migraines and asked her what medication she took.  She reached into her bag and pulled out the same brand of tablets I used.  The neon sign in my head faded a little bit.  Hmph.  Before I had a chance to double down, she pulled a second box out of her bag and said, “when I feel like I’m going to vomit and won’t be able to keep the tablet down, I use this instead… it’s a suppository… do you want to take one home to try?”

[And yes, it was a very awkward, ikky moment. (A suppository delivers a drug in a manner which bypasses your digestion system – usually by, well… let’s say, you sit on it.) The idea of borrowing someone else’s suppository – albeit brand new – is not great.]

Her approach to migraine-management appeared ‘next-level’ to me, and I discovered a new-found respect for her, and decided she really did get migraines.  I was still very confused about her version of a migraine, but the neon-light in my head that had screamed ‘liar’ finally switched off.

Fast-forward 30 years. Now I’m a ‘crazy old lady’ in my 50s who gets migraines that don’t look anything like a ‘typical’ migraine.  For the last 2+ years, I have had low-level, non-stop pain in my migraine-eye. The pain can often sit for days around 1-2, sometimes moving up to a 3 or 4 where I feel like my head is in a vice, and my neck gets stiff. Sometimes there’s brain-fog, sometimes not. Occasionally, the pain spills over and escalates to a 5 or 6 and I have to spend the day in bed.  It means that for a lot of the week I can SIMULTANEOUSLY have a migraine AND type and answer phone calls, and if push came to shove, I could reluctantly run a receptionist’s desk… for a little while (the relentless pain still makes me a bit too tired and cranky to be the public face of a company 9 to 5).  I can honestly say that I have been writing and researching a PhD for the last 2 years whilst also experiencing a non-stop migraine.

I wish I could go back to that day at the receptionist’s counter and do it all over again.

In the redo, when she told me she had a migraine, I would empathize not criticize. I would be supportive not suspicious.  I would 100% give her the benefit of the doubt.  Mostly, I would admire her resilience and commitment to show up to work regardless of the pain she must have been in.

When someone tells you they have a migraine – remember that their brain-pain is different to yours – don’t judge, don’t question, don’t compare… just show kindness.

More than anything – never ever assume a person who says “I have a migraine” is lying.

Take care, Linda x


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45 responses to ““I have a migraine” is NOT a lie”

  1. James Viscosi Avatar

    I remember when I first started getting migraines as a teenager, I don’t think anyone quite believed me until I threw up a few times …

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Nothing like vomit to convince someone your illness is real! 🤣 I shouldn’t laugh, but I’ve been there too… migraines are so ‘invisible’ that people just can’t relate. Hope they’re better now, and that the people who know you best know what’s real, so you don’t have to ‘prove’ yourself any more. xx

      Liked by 1 person

      1. James Viscosi Avatar

        My migraines mostly faded out when I was in my 40s, and I wasn’t sad to see them go, believe me!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Oh gosh… I can’t wait to wave mine goodbye as they fade into the sunset!! xx

          Like

  2. moodverse907 Avatar

    My mother suffered with severe migraines. At 9-10 I had my first. She took me to the Dr. And they suggested I wear sunglasses outside in addition to the usual children’s pain reliever. As I grew older they happened but not as bad as my mothers. I’m lucky to get them only occasionally now because I know how she suffered and how debilitating they can be. You are right, you cannot judge because we all have them differently, at different times and on different levels. Good read & lesson Linda, thank you for the reminder 👏

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      You’re so welcome – and thank you for being such an empathetic person (perhaps because you’ve ‘been there’ yourself and with your mother). Great news that you’re not as affected – it’s one club you’re better off not being a member of if you can avoid it! L xx

      Liked by 1 person

  3. festo_sanjo Avatar

    I had headaches as a kid, I haven’t heard of migranes! It’s humbling to know everyone has their own struggles…stay strong!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thanks – I’m trying to!!

      Liked by 1 person

  4. Fangirl Filet Avatar
    Fangirl Filet

    I love this post! I suffer from chronic migraines but I’m a high functioning person because I very rarely admit defeat (to the point where I’ll be so sick i can barely walk and dragging a chair over to go do the dishes), and my migraines are mainly slurred words, intense pain, and severe nausea, very rarely spotty vision, so I often feel like a “faker” myself. Great advocation!!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I hear you!! I often feel like I’m ‘not sick enough’ to complain, which is ridiculous! Here’s hoping you have a pain-free weekend if possible! Xx

      Like

      1. Fangirl Filet Avatar
        Fangirl Filet

        Glad you agree!! Same to you 🙂

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🌞

          Like

  5. joannerambling Avatar

    When someone tells me they have a migraine but don’t look like they one, I don’t think they are lying but do wonder if it is a migraine or just a really bad headache as those who do not get migraines may confuse the two

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      That thought crossed my mind too – even for myself sometimes! No two migraines are identical- even for the same person! Xx

      Like

  6. markbialczak Avatar

    So many aspects of life are different for all of us, thanks for the reminder, Linda!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My pleasure 😊

      Like

  7. silverapplequeen Avatar

    Where I’m from, “I have a migraine” usually means, “I have a hangover”.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🤣yeah, it often equates to “I have a really bad headache – must be a migraine!”

      Liked by 1 person

  8. sedge808 Avatar

    I would be supportive not suspicious.

    I hear you.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Yeah… young me was a brat! 😔

      Liked by 1 person

      1. sedge808 Avatar

        Me too. Very precocious

        Liked by 1 person

  9. Kiss By The Book Avatar

    It sounds like she didn’t take offense to it, and even offered her help (yes, a tad awkward to offer a suppository, but helpful nonetheless! 😅). From what I just read, you learned so much from that experience and from your subsequent experiences with migraines. We’re all a little myopic when we’re younger, it happens.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thankfully I turned out ok!! I’m trying to pass the lesson on to my daughters so they’re not rude to people who might be silently suffering. Xx

      Liked by 1 person

  10. mchelsmusings Avatar

    I’ve tried a suppository in the beginning phase with the VA. My provider at that time was very into trying new things to help a patient get pain relief. The skin there is supposedly thinner and the medication hits the bloodstream faster than having to go through the stomach first. OMG 😳 I had to call my dad to come get me and to bring Patrick to drive my car back. That suppository hit me so fast I was out of it. Dad brought me my blackout lenses and something to cover my head while I was passing in and out of consciousness.
    But yes over the years I’ve learned to be kinder to myself and others.

    Liked by 1 person

    1. mchelsmusings Avatar

      Ps I miss those lenses. Someone stole them out of my office. 😡

      Liked by 1 person

      1. The Mindful Migraine Blog Avatar

        I’ve never heard of them – they sound like something you’d have in a weather emergency! xx

        Liked by 1 person

        1. mchelsmusings Avatar

          Oh I relied on them. They were $200.00 out of pocket. But were definitely worth it! They were prescription lenses so I could drive with them. The lenses were dark! The PoPos didn’t like them. 😂 I was pulled over more often.

          Liked by 1 person

          1. The Mindful Migraine Blog Avatar

            I can’t imagine you being cop-bait 🤣then again; no one ever gets our pain!?!

            Liked by 1 person

            1. mchelsmusings Avatar

              😂 IKR! But apparently drug dealers wear those type of lenses. I was like really. I showed them my eyes, and my VA card. Told them that they could call my provider to ensure these were prescription lenses. By that time they were are oh I’m so sorry. We can escort you home. I’m like huh. No thanks.

              Liked by 1 person

              1. The Mindful Migraine Blog Avatar

                I don’t know, I think an escort (with lights) would be kinda cool!, imagine the neighbours! Xx

                Liked by 1 person

                1. mchelsmusings Avatar

                  😂 but there’s reasons I don’t and the flashing lights ugh 😣
                  💜💜

                  Liked by 1 person

                  1. The Mindful Migraine Blog Avatar

                    😊

                    Liked by 1 person

    2. The Mindful Migraine Blog Avatar

      I’ve heard similar stories about how they react too fast too strong – I think that’s why they switched to nasal sprays; similar idea but less dramatic. Glad you survived the experience! AND that you’ve learnt to be a kind person – (that’s super clear in all that you write) – I’m just embarrassed it took me so long! xx

      Liked by 1 person

      1. mchelsmusings Avatar

        Nah. Life experiences are different for everyone. I’m so proud of you going for your PhD. I’d love to but I can’t figure out how to work it. But that’s OK.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          There’s always the future – I’ll be 55 by the time I’m done (hopefully!!)

          Liked by 1 person

          1. mchelsmusings Avatar

            I’m past that now. But I’m still young enough cause I’m still here! 🥳 I literally have to use a calculator to figure out how experienced I am. I don’t say older. 😂

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              🤣❤️

              Liked by 1 person

              1. mchelsmusings Avatar

                Every year I level up. 😂 👾

                Liked by 1 person

  11. SiriusSea Avatar

    Irks me to no end when experiencing pain and then having to explain it to someone who doubts you from the second you spoke. And maintain composure with a smile! Pain isn’t fashionable or apparently believable! (Rant over) Thank you for writing this, Linda ❤ and the more knowledge surrounding these afflictions maybe compassion will be administered.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      It annoys me no end as well – but I have to acknowledge that I was just as ignorant when I was younger – having been on both sides of the line, I guess I sort of get it… but still… grrr…

      Liked by 2 people

      1. SiriusSea Avatar

        I’m so surprised by Lil’ Linda ❤ … and I get it 😉 but still … grrr ~ LOLOL

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Yeah… be a good person – don’t be Lil’ Linda!! 🤣

          Liked by 1 person

          1. SiriusSea Avatar

            You are hilarious !!!! 😉 ~ ❤

            Liked by 1 person

  12. lbeth1950 Avatar

    Live and learn, hopefully.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      As someone who’s pain is constantly doubted, it is very humbling to remember I was on the serving-end of the lack of compassion when I was younger – I’ve definitely learnt to be more open minded about other people’s illnesses, I just hope other people can be too (before they ‘join the club’). xx

      Liked by 2 people

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