The face of (dis)ability

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OK, so the photo is accidentally very low resolution – and it’s not the most flattering image of me I’ve ever taken – but hopefully it gets my point across. 

People who are sick are also capable. 

A while ago I wrote a post about living with brain-fog and in response, Edward, a friend and fellow-blogger (here), suggested that I wear a t-shirt on the tough days to tell people (in a fun way) I was struggling.  I jumped online and there it was; “Today’s forecast is BRAIN FOG” – it even had a little logo for a fog-lamp which I had been writing about – woo-hoo! (thanks Edward!). 

About the same time as I was adding to my wardrobe, I also found out about the Sunflower initiative, where people with invisible disabilities wear a lanyard or pin, with the sunflower logo on it, to alert people to the fact that the wearer might need a little more time and support to navigate the situation (such as when you’re shopping, exploring a new place, or taking a trip on an airplane). 

As a person with chronic migraine, there are plenty of days when I need to ‘lean into’ the version of me that lives with an invisible disability. That’s the “bad part” of being me – living with chronic illness makes me slow and unsteady (sometimes).

On the upside of being me, however, there’s also plenty of “good things” underway. I write a blog, Monday through Friday, sharing my tips and tricks and hopefully helping a few people along the way.  [The mug in the picture has my healing mandala ‘logo’ on it – my daughters gave it to me for Mother’s Day earlier this year to show their support for my endeavors.] 

Oh, and that big stack of paper that I’m holding? It’s the first draft of my PhD dissertation.  4 years in the making and 98,000 words (too) long, I still have a way to go to get it down to something closer to 85,000 words, but I’m unbelievably proud that I have something to hold onto!

Here’s the full picture so you can see the lanyard and all…

So – my point is – people who are sick are also capable. We are often (un)productive, swinging between the polite lie of “I’m fine” and a genuine “great thanks”, one day after the other, sometimes even swinging between both moods on the SAME day.

People with a disability have plenty of ability!

If you know someone who lives with a chronic illness or chronic pain, help them celebrate their successes as they occur – I have no doubt that A LOT of effort has gone into making their dreams come true.

If YOU live with a chronic condition, know that I get you – somedays are so hard, no doubt about it… but on the days that are not terrible, keep going and keep growing, take those baby steps towards being the person you want to be… or being the amazing person you already are!

Now, before closing off for the week and wishing you all a wonderful weekend, I want to do a quick blog-shoutout to celebrate 7 months of blogging (yep, tomorrow will be the 17th again – which means it’s my blogging anniversary – boy how time flies!).  Here’s 11 blogs that I have come across in the last month that have piqued my curiosity and kept me reading and writing.

To help keep the fabulous communal spirit that is Blog-Land alive, click on any of the names below, meet a new blogger and leave a message on their post to say hello!:

Black Quill blog: blackquillblog – The writings of a Crow

Curiosities, Castles & Coffee shops: The musings of a curious mind

Couple of Words: Couple of Words – Not today …

Life with Charli: Even just a little inspiration goes a long way

Life target: Life target – exploring the right target of life

Love life with Dawna: Love Life with Dawna

Mood Verses: Mood Verses

Nutsrok: The humor and humanity of storytelling

Reunions and Secrets: Blog Posts – Reunions and Secrets Blog

Silk cords: Ramblings from the one and only Silk Cords

The Wild Pomegranate Tree: Reimagining the Hebrew bible with humane, healing, inclusive and joyful themes

Here’s cheers to everyone living their best life… however hard that living might be – hang in there – you’ve got this!

Take care, Linda x


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81 responses to “The face of (dis)ability”

  1. “Dr Linda”… at last! – The Mindful Migraine Avatar

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  6. Charli Dee Avatar

    Hi Linda! It’s been a while! I really enjoyed reading this post! I never knew about the Sunflower Initiative. I think I should get a sunflower initiative lanyard for myself. I really admire your openness about your disability and struggles. I know not a lot of people with an invisible disability like to be open about it. I remember one time a classmate of mine approached me about getting disability assistance from the school. It wasn’t until after our conversation that I realized that she was talking to me really quietly and probably didn’t want others to know about her disability. I responded to her a little loudly, but unfortunately I didn’t realize that until after our conversation. I felt so bad when I thought over our talk. I’m not too far from my classmate. I’m not very open my Turner syndrome and my struggles with the condition. As you’ve probably noticed I don’t really share my picture on my blog. I’m shy about people in my life knowing certain things. At the same time, I would love to be an advocate for Turner syndrome. If that’s the case, I think I should be more open to sharing my journey. So I really admire you for sharing your journey and being so public about it. I also want to congratulate you on doing your doctorate! That’s amazing! How is your dissertation coming along. Have you finished it by now? I’m so happy for you! You really are an inspiration!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’m still studying – I’m taking it slow, but hope to be finished sometime next year. As for being a shy-advocate that’s ok. It took me months before I put up a photo – and I still don’t do it too often… people called my “sundial” when I was in school (they said they could tell the time of day because my nose was so big)… it took me a while to see that the good I might be able to do outweighed the embarrassment of putting myself out there. You’ll know when the time is right, if at all – until then; keep being your authentic self – I think you’re doing great! Linda xoxoxox

      Liked by 1 person

      1. Charli Dee Avatar

        They called you names in school? Wow! Kids can be so cruel! I remember getting teased at school too because of my nose. I remember telling my parents I wish I had a different nose. How do you feel about your nose today?

        I’m moving slowly through school too so I totally understand! Recently I’ve mostly been taking 1 or 2 classes at a time. It means it will take longer for me to graduate, but I’m ok with that because I know what I can handle at the moment. I can just imagine how hard doing a doctorate degree is!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Slow and steady wins OUR race – I don’t worry too much about anyone else’s… as for my nose – I still wish it was different… but I also know that I could never undergo surgery – I don’t love it, but I don’t hate it… if that makes sense?

          Liked by 1 person

          1. Charli Dee Avatar

            That makes sense to me! I feel the same way about my nose. I don’t love my nose but I wouldn’t have surgery unless I absolutely need to. I’ve already had surgery on my neck and I have a scar there, I think I’ve had enough surgeries to last me!

            I love your outlook on your educational journey! I’m trying to have that outlook as well! Besides, comparing yourself to others only leads to unhappiness. I’ve been learning that.

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              Keep being the best version of you – that’s more than enough! xox

              Liked by 1 person

              1. Charli Dee Avatar

                Awwww! You’re so sweet! Thankyou!

                Liked by 1 person

                1. The Mindful Migraine Blog Avatar

                  My pleasure 💜

                  Liked by 1 person

  7. Ana Daksina Avatar

    Passed your information about the hidden disabilities lanyard forward to my readers with grateful mention 🙏

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Fabulous! Hope it helps them as much as it’s helping me! Xx

      Liked by 1 person

      1. Ana Daksina Avatar

        😊👌

        Liked by 1 person

  8. GENtelXc369 Avatar
    GENtelXc369

    ❤️❤️❤️❤️❤️❤️❤️❤️

    Liked by 1 person

  9.  Avatar
    Anonymous

    Thank you for sharing this. I love your t-shirt!

    I have been suffering from all kinds of weird stuff and had a few days with brain fog myself and taadaa…. just got the official fibro diagnosis. Probably way less painful than migraines but still annoying AF.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      There’s no better or worse conditions when it comes to chronic pain diagnosis – it all sux. I know that there are quite a few people who blog about fibro, and there’s a lot of Instagram pages too – so you’re bound to find some likeminded people who can help you through this new development. You’re always welcome here too – reach out via the contact page if you ever feel a bit overwhelmed… it can be a bit of a roller coaster finding the best way to live with more joy and less pain. Take care, Linda xx

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  10. Kaayee Puzzles Avatar

    Thank you for sharing your powerful perspective..

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you for reading it!! Xx

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  11.  Avatar
    Anonymous

    Thank you Linda – “To help keep the fabulous communal spirit that is Blog-Land alive”

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🥰you’re welcome!!

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  12.  Avatar
    Anonymous

    The sunflower badge is a brilliant idea, and a new one to me. Writing a blog to share what works for you is another brilliant idea. I’m extremely lucky in that I don’t know, first hand, what a migraine is like, but I’ve been told several times recently that the onset of arthritis is inevitable so I feel like I might be able to take away some helpful tips anyway.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh no – “inevitable” is a grim diagnosis – but both my mother and sister are still living joyful, meaningful lives with arthritis, so I’m sure you will too. The trick is not so much about reducing the pain as it is increasing the pleasure you can find in life – it’s a small but mighty pivot in your attitude, and as someone wrote to me recently: “energy flows where attention goes”. Good luck – you’re always welcome here, Linda xx

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