Be prepared… but like, REALLY prepared

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The Boy Scouts have a saying (or at least they did when I was there earning my merit badges while backpacking with leeches) which is “be prepared”. The idea is to hope for the best but plan for the worst. Don’t head off into the wilderness without a bottle of water, some high-calorie snacks, a box of matches, a map, and yeah… nah… no hairdryer required!

Being a migraine person is a bit the same. You can’t just “wing it” when you head off into the wilderness that is your local park, public transport, or place of work… tame places for “normal” people, I know, but environments which are actually fraught with migraine-inducing-triggers.

For example – if the sun is up; you have to take a hat and sunglasses to combat the glare… I’ve even heard of people who wear visors indoors to keep some of the ceiling-light off their faces.

You absolutely must take an emotional-support-water-bottle with you wherever you go… and maybe two (one plain, one with vitamin supplements melted in… and maybe even a sports drink for added electrolytes wouldn’t hurt if you’ve got room in your handbag!)

I for one, don’t leave home without my peppermint-lavender essential oil roll-on.

If it’s a long car trip I’m signing up for, then, I’m sorry to say, but I might also be sliding into your side seat with a plastic bag and a towel in case my nausea` troubles me… which I guess by default, will trouble you…

Oh, and then of course there’s the medications… my version of “be prepared” means that I keep the family’s prescriptions in one place in a kitchen cupboard on a high shelf (which was designed to be hard to get to… but now that my children are teenagers… I’m the only one who has to stand on tip-toe to get up there!). In addition to the “main place”, I also have all my regular preventative medications (which I take each day) in my bathroom near my toothbrush so they don’t get forgotten. Then there’s the meds in my handbag, and the ones in the car’s glovebox… my bedside table is a bit of a pharmacy come to think about it… I have an emergency tablet cut out of its wrapper in the back of my phone case… and I have been known to pop an extra sheet of tablets into the back pocket of my jeans…

Over the top? Perhaps… but here’s the thing – a migraine is a neurological condition… not just a bad headache. When a migraine kicks in – (and as a smarty-pants person, I hate to say this) – it’s as if you lose a few IQ points in an instant. When the pain really kicks in, it becomes literally disabling – you – just – can’t – think – straight – or – at – all.

In my worst migraine, a Number 10 on my Pain Scale, I have vague recollections of crawling around on the floor trying to phone 911 for an ambulance on the TV remote control… which was never going to work – because in Australia you call 000… and because… you know… it was a TV remote.

So, here’s the thing – you can have a great “emergency plan” for what you’re going to do when a migraine starts; “take a tablet, call the neighbor to get the kids after school, head home to sleep it off…” AND none of that can happen… you may well end up vomiting in the bushes, sleeping in the backseat of your car, and trying to remember whether you did or did not take a tablet already…

It’s not your fault.

You’re not confused, or lazy, or disorganized – you’re unlucky that you’re sick with a really rotten migraine.

That’s why you have to be REALLY prepared. You need to have your medication close by and in an obvious location, so that there’s no stumbling around the house at midnight or tipping your handbag on the sidewalk scrounging…

If your migraines have dramatic side-effects, you might want to consider a medical alert. Perhaps not a “help I’ve fallen and can’t get up” sort of push-button… but a keyring or bangle that you can point to if you can’t speak.

[It might sound unlikely, but hemiplegic migraines (my type) can cause a response that looks like you’re having a stroke – and you can’t talk or walk properly].

When my children were first born, I was worried that I might be out pushing the pram one day and have a stroke-like-migraine and not be able to tell people what was wrong. So, I organized medical alert tabs (with an explanation and contact numbers on it). I popped one on my car-keys and another on the strap of my handbag. It cost almost nothing but brought me a huge amount of peace of mind.

So, if you’re a fellow “sicko” like me – be prepared – but extra prepared, because when you get sick, your brain ain’t gonna brain.

Take care taking care, Linda x

PS – I went looking on a popular retail website that always makes me laugh when I look at the adds… (it tried to sell me a headache once (here)) – and bless its digital heart… it was good for a laugh yet again (sorry diabatics – I’m not laughing at you):

[189 sold???]


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26 responses to “Be prepared… but like, REALLY prepared”

  1. Ice-curling and chronic pain – The Mindful Migraine Avatar

    […] partly our overly anxious brain over-thinking everything… but it’s also about “being prepared” in a way which is a must for chronic pain […]

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  2. Aphasia armsand… what? – The Mindful Migraine Avatar

    […] thinking I’m drunk or on drugs when my speech slurs (it’s happened – read more here). Another time I had just enough time to write my home address on the back of a business card to […]

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  3. Welcome to my revelation – The Mindful Migraine Avatar

    […] of how we have to “be (REALLY) prepared” (with a call out to “diabatics” here). The post included the potential of carrying a keyring with your condition and support […]

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  4. Writer McWriterson Avatar

    This is my first time reading your blog—I found it through your comment, and I’m so glad I did. I’ve been suffering from migraines for over 15 years, and coincidentally, I had one yesterday when I read your comment. Your post (and these comments) made me feel so much less alone.

    I never leave the house without my migraine SOS kit, and if I do, it feels like the blood drains from my body. I even drove an hour back home once to get it! All that to say, I’m so grateful I found you yesterday. 😘❤️

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh no – it’s always bitter sweet to greet more members into Club Migraine – it’s not a fun team to be on, but it IS reassuring to realize you’re not alone… the way we heal is through isolating ourselves from noise and light and people… but that is its own form of torture…

      I hope that you find some wise words from me or the other readers to help you feel even less lonely… and yes, I’ve been known to have the car turned around to retrieve a missing “just in case” box of meds! The things we do! L xox

      Liked by 1 person

  5. Astrid's Words Avatar

    Hope for the best, plan for the worst. This was definitely helpful in my seizure days and is still a constant without so many neurological mishaps. I’ve learned to open myself up to accept whatever happens and be ready to look for a small lesson to learn in all circumstances. Just recently I realized how much work goes into planning when you have a disability. I’ve done it for years without recognizing it. Your post brought that point home. We’re really not alone in what we do, even if it feels like it 🙂

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      All across the world, we’re each facing our battles alone… and yet… together as part of a club of fellow fighters! xox

      Liked by 1 person

  6. mchelsmusings Avatar

    I have a Go Bag for work and 1 for road trips and another 1 for going to peoples houses! I don’t expect others to have what I might need! And I prefer my own stuff anyways. I’ve been looking for a pillow for my back. I’m finicky. 😂 but I know what I can/can’t handle with my migraines and fibromyalgia and my other laundry list of medical issues.
    I understand! Hugs 💜

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’m watching what’s unfolding in Florida right now and can’t imagine the stress people would be under… made me rethink whether I’m as prepared as I imagined!

      Liked by 1 person

      1. mchelsmusings Avatar

        I have friends there that are refusing to leave. I’m letting go. Their decision their consequences. I can only handle what I can control. Take care! 💜

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          That’s what I wrote about today – I have to learn to let go too – I’ve been ridiculously stressed about other people’s decisions… 💜💜💜

          Liked by 1 person

  7. Silk Cords Avatar

    I remember those days… running into the office bathroom to throw up from the pain, etc… I’m glad I was able to put them largely behind me.

    You’re absolutely right on all that prep needed for doing anything.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Seems a shame to have to micro-manage everything… but you get used to it… no point complaining… especially when I hear what’s happening in Florida at the moment (gulp)… everything I’m going through fades into insignificance…

      Like

  8. Priti Avatar

    👍👍

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🌞

      Liked by 1 person

  9. joannerambling Avatar

    Being prepared is common sense but yet so many are not prepared and when the pain hits they are rocked more then they would be if there were prepared for it

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      And with the world being so crazy right about now – the need to stay on top of it is even more important! Stay safe xx

      Like

  10. silverapplequeen Avatar

    I carry a backpack instead of a purse & it’s really a medicine chest in disguise ~ meds, bandaids, antacids, etc. LOL

    Also a portable desk with notebooks, pens, camera, tarot deck, crystals

    & of course some snacks ~ trail mix, an apple 🙂

    I used to have a boy scout pin that said “be prepared” but I lost it! I wore it on my denim jacket for YEARS

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🤣you really are prepared! Love the portable desk idea (especially tarot cards – you never know when you might have to forecast your future – although I’m leaning towards runes these days)! xox

      Like

      1. silverapplequeen Avatar

        I have lots of tarot decks, oracle cards, Lenormand decks, as well as runes, several pendulums ~ I know how to read tea leaves, too! ~ my grandmother taught me when I was just a little girl! ~ & I just found out about Kipper cards & want to get a set of those in the worst way! They’re on my Yule list 🙂

        I always carry a rosary as well, too. I’m ALWAYS prepared!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Love it – no matter what occurs in this life (or the next) – sounds like you have it covered! xx

          Liked by 1 person

  11. macalder02 Avatar

    When I finished reading the blessed migraine preparation, I ended up completely exhausted just imagining such steps to always be alert when it appears. I don’t have family or friends who have suffered them. So, it was a learning experience in reading this interesting story. Good night

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you so much for visiting! It means a lot to me. Glad your family is migraine free! Good night, sleep tight, L xx

      Liked by 1 person

      1. macalder02 Avatar

        You are welcome

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🥰

          Liked by 1 person

    2. Gwen Courtman Author Avatar

      I’ve just found your blog. I feel you! I live my summer prepared for a migraine. Mine come on during the hot summer when I have to work outdoors in the Italian sunshine. I hydrate, I have a routine but often nothing works. I see yellow everywhere and that’s me off to bed as soon as I can. Sometimes they last days and there is no way out if the tunnel

      Like

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