My migraine’s scar howl

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I’m no poet, but I love words and what people can do with them. Sometimes I read the poems on other people’s blogs and something in the combination of sounds and sentences makes me ooh and aah.

Way back at the beginning of the year, I was on the Ink Stains & Daydreams blog and I read a poem called “Scar Howl“.

As well as being a great poem, the title has stayed with me many months later.

Why?

Because it seems to call to something deep inside me, resonating with my current state of healing.

For many long months I had a migraine every day, almost all day, and was essentially bedbound. Then, slowly, slowly, I started to get less and less serious migraine attacks after doing mindfulness exercises (prompted by my neurologist who told me “more medicine doesn’t equal less pain” and by extrapolation; “you need to change your life not your prescription”).

Even as I got progressively better, however, my right eye still felt low-level pain 24/7… I recently passed 1000 days of pain, and then 3 years of being (un)well… and whilst I do have some days where the pain in my eye is close to zero, it is rarely ever zero-zero, and never for long.

As a result, I’m starting to think of the pain as a scar howl… some sort of whispered wail that my body is softly sending me…

Perhaps it is my body’s way of saying, “you’ve addressed most of the stress in your life… but… not ALL of it.”

Or else, perhaps, it’s not a signal that anything else is ‘wrong’ or needs to be ‘fixed’, rather, it’s some sort of echo… the last sign of a past pain, in the same way I still have a crinkled fold under my chin from where I received three stitches after face-planting the ice-rink whilst learning to skate.

Or else, perhaps, it is less memory, more legacy; an embedded message that my brain has hard-wired into its neurology; neuroplasticity gone as wrong as a back-to-front-bike-ride

…a primal instinct to bay at the moon…

…a moon-bay.

The idea leaves me conflicted – I feel both despair and great comfort in the thought that my body is lingering over something that should be a long-lost memory… an olden-days-time I was supposed to have mindfully evolved beyond… but it also seems a remnant, a reverie, of the old me that I have transformationally left behind… and yet… never really can.

Now, when I feel that twinge in my eye, I stop and assess it… give it time.

Are you the beginning of a bad migraine (my once-was signal that a migraine attack was coming) or are you more of a moon-bay (a lingering attachment to the old days)…?

Sometimes I can tell whether it’s alarm bell or echo.

Other times, it remains confusing, and I can only wait and see.

In the same way that I can’t quite articulate what “scar howl” means to me, I can’t quite put my finger on where on the healing illness-wellness spectrum I am today – right now – because it seems to shift almost imperceptibly when I turn my attention to the conundrum. It’s like the mysterious haze of a figure you see in your peripheral vision that vanishes when you turn your gaze on it.

For some reason, after all this time living with migraine pain, and more recently, writing about ways to reduce the pain and increase the joy in our chronic-pain-lives… still… still I find that the material won’t quite reveal itself to my laser-like focus.

Maybe it’s akin to the way we need someone else to point out our flaws – it’s some sort of self-defense mechanism that prevents us from truth-seeking truthfully.

Maybe it’s the fact that healing is a complex, multi-faceted arrangement that takes place across so many aspects of our mental, physical, social, spiritual and creative self, that it is too hard to see a fixed version of reality in such a shifting set of forms.

Maybe our health is like the moon – waxing and waning – growing and shrinking – constantly in motion, albeit super slowly, as we shift from cut-crescent to full-balled… and back again.

Maybe our scars are as vocal as they are visible, and they will bay at our healing-moon forever…

Maybe.

Take care taking care out there, Linda xx


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28 responses to “My migraine’s scar howl”

  1. “Be someone’s lighthouse” – The Mindful Migraine Avatar

    […] “Scar howl” was one such phrase, “reweave” yourself is another, and the song lyrics that referred to being “tied to the mast” were yet another. […]

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  2. Trishie Avatar

    I am going through similar, cant remember the last time I didnt have some form of headache/migraine and other pain. Thankyou for posting this, I like the idea of a somatic howl or roar and the idea of healing being tidal rather than linear. Thankyou

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      My heart goes out to you – it is exhausting and so few people seem to understand which makes it lonely too. Sending support, Linda xx

      Liked by 1 person

  3. Shadow work (try it) – The Mindful Migraine Avatar

    […] little while ago, I wrote about a lingering pain I labelled “my migraine’s scar howl“. One of my lovely readers, the fabulous blogger Sue Dreamwalker, replied to the post with […]

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  4. Charli Dee Avatar

    Such a beautifully written post Linda. It really gives an idea of what you have been going through. I can relate a little with my mental health journey. I have also made lifestyle changes and started doing mindfulness exercises to help with my depression.Β Β They have been so helpful, and I haven’t had a full depression episode in a while. However, everything is not perfect. I still have days when I judge myself and I’m hoping I won’t enter into another depressive episode. There is still that little remnant of depression there even though I’m feeling so much better these days.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      It’s tricky isn’t… we can feel better, but there is still a sense of a shadow that lingers… but not necessarily forever… I have huge optimism for you and me both – we’re working hard (yet gently) to heal ourselves- and I truly believe we can. Here’s to a future of continual growth and self-development. You’ve got this! L xx

      Liked by 1 person

      1. Charli Dee Avatar

        Awww! Thankyou Linda! I believe in you too! It’s not an easy road or process, but we are definitely putting in the work!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Hope today’s a good day for you my dear! L xx

          Like

  5. daylerogers Avatar

    I find that if I don’t listen to my head, my body begins to speak in ways I’m not fond of. I’m so sorry for your pain, Linda. You are a fighter, my friend. An eloquent fighter.

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      Thank you Dale – some days are better than others – but I think you’re right – the trick is learning to listen to what our bodies are trying to say before the whisper turns into a wail! L xx

      Liked by 2 people

  6. Mary K. Doyle Avatar

    Ugh! I am sorry for all the pain, MM. I understand and send you love.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you Mary – all affection gratefully received, and similar sentiments sent straight back! L xx

      Liked by 1 person

  7. veerites Avatar

    Thanks for liking my post Action5πŸ™

    Like

  8. Indira Avatar

    Interesting explanation of ‘scar howl’.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you! πŸ’œ

      Liked by 1 person

  9. Sue Dreamwalker Avatar

    They say our ‘Body Talks’ to us, and from all I have read upon your blog posts Linda, I know the hard work you have put in, to heal, and find the root cause of your Migraines.

    Its a little like when we do our own inner Shadow Work. as we route out the wounding of emotions often incurred in childhood or even before that we carry with us as shields of armour…
    So many layers I know I have personally dug through within my own inner healing that manifested outwardly in illness and Dis-ease. And there is always One, just something that reoccurs that pops back up again, just when you think you have cleared the way…

    I know Linda you have done remarkably well in achieving greater wellness, I am certain this last scar howl is as you say, like the moon, it waxes and wanes, comes and goes. Maybe a root still lurking deep.. But I am sure you will find it, when its ready to be released..

    Much love dear Linda…. Have a peaceful painfree weekend xx ❀

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh! I haven’t heard of shadow work – but I feel like I should have… off to explore…

      But first – thank you so much for your kind words – your support means so much to me, and your phrasing of dis-ease is very powerful, thank you! Linda xox

      Liked by 1 person

      1. Sue Dreamwalker Avatar

        Working with Louise Hays book ‘ You Can Heal Your Life’ first introduced me to the Dis-ease of Self. And powerful Affirmations, which helped my own healing journey such a lot.
        And I am sure you will discover Shadow Work is what you have already been doing xx ❀

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          I did a bit of research last night, and will follow up with a post – it sounds very similar to what I have been doing, but even more ‘honest’ for a better word…. I think I skirt around some of the issues… it was an interesting read – thanks for the tips! L xx

          Liked by 1 person

          1. Sue Dreamwalker Avatar

            You’re very welcome xx

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              πŸ₯°

              Liked by 1 person

  10. richardbist Avatar

    You describe this beautifully. I experience the ‘scar howl’ myself, and even went to see my physician about it (he’s wonderful, prefers holistic to pharmaceutical healing), and that’s basically what he told me. The original pain went on for so long that now it’s healed, there continues to be echoes of that pain. Pain memory. Scar howls.

    Hope you have a wonderful weekend, my friend.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh Richard! I’m so sorry that you feel it too… but I am grateful that you shared your relationship to it too… it makes me feel more sane! Hope that your weekend was as wonderful as could be – and the week ahead is even better, L xx

      Like

  11. veerites Avatar

    Dear Mind
    It’s a rare pleasure to consistently enjoy your posts.
    Thanks for liking my post Listening 5 πŸ™

    Like

  12. majellalaws Avatar

    Bessel Van Der Kolk’s book The Body Keeps The Score is about how trauma is stored in our bodies. Where there is a long term illness, maybe our bodies become habituated and store that memory in a similar way. Or maybe in your migraines that eye was affected most and its too scared to feel safe to heal. Maybe, maybe, maybe …. all just random thoughts …

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      It’s interesting isn’t it… I can’t quite pin down the answer. I have read The Body Keeps Score (I found it a bit troublesome (I’ll write a review eventually)) but I agree that we probably do hold onto the emotional drama in our beings much longer than our logical minds do. Even if I can’t fully understand it, I think it’s important to stay curious, because even “maybe” holds power!

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      1. James Viscosi Avatar

        I haven’t read this book but I recently saw a review of it. It was interesting because in my last EMDR session for the medical PTSD, one of the things my EMDR therapist said to me (because I kept tensing up thinking about being stuck in that ICU bed and wired up seven ways to Sunday) was, “Your body has a memory too.”

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Yikes – that would be an unpleasant memory – I’m not surprised you have residual tension!! Here’s to a brighter, freer, lighter future for both of us! L xx

          Like

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