Trapped in migraine postdrome

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Today’s post outlines what the 4 phases of a migraine are, including the fourth stage – ‘postdrome’ – and it explains why chronic migraine can feel like you’re permanently stuck in a state of postdrome. But it’s not all bad news; it also provides some ideas about how to change your predicament.

According to Migraine.com, there are 4 phases to a migraine:

  • Prodrome
  • Aura
  • Headache
  • Postdrome

1. Prodrome can start 24 to 48 hours before a migraine ‘attack’ (the obvious pain-part of a migraine). This ‘pre-headache phase’ often includes symptoms such as irritability, fatigue, mood changes, food cravings, yawning, stiff neck or sensitivity to light and noises. According to the site, 80% of migraineurs experience these sorts of pre-migraine symptoms.

[I get all of these, but also occasionally get the opposite of fatigue, and become hyper-active and have a sudden burst of energy that makes me clean the house in a whirlwind… and then, when I get sick soon after I wonder if I ‘over did it’ on the cleaning and that’s why I’m sick… it’s taken a long time to figure out it’s not cause and effect, rather, the hyperactivity is actually an effect that’s brought on by the cause… if you get what I mean?]

2. Aura can manifest in different ways. The one that is most often talked about are visual changes (sparkles, zigzags or rainbow overlays to everything people are looking at). BUT there are other sensory changes that can occur too. Some patients notice that their sense of smell becomes more acute, they hear a ringing sound or distorted noise, or the way things feel in their hands changes. Others have a burning feeling in their mouth, extreme dizziness, or a form of paralysis. Apparently 25% of patients report they experience aura, and aura can last from anywhere between 5 minutes and an hour. (Around 4% of patients have the aura but no later pain.)

[I’m going to go out on a limb and suggest the number of people who have aura is probably a bit higher, it’s just that many of us don’t notice it’s happening. My bad migraines involve hemiplegia where one side of my body becomes paralyzed, and I can’t get my mouth to form words (it’s as if I have had a stroke). By the time this was happening, I had minutes to get myself to bed (or the backseat of a car) before the full-blown migraine arrives. Only in the last couple of years have I become aware of much more subtle aura-symptoms. For me, the hint that a migraine is getting close is that my face feels ‘funny’ and I notice tingling in my fingertips; it’s very subtle, but now I recognize it, I notice it more and more.]

[But sometimes there are even subtler ‘tells’. One day I was feeling OK, but as I was washing my hands, I noticed I could REALLY smell the soap. For a second I was confused why the soap was suddenly so extra-fragrant, and then I remembered auras, and realized I was about to have a migraine attack. I was able to take my medication and get to bed, and whilst the migraine did arrive, it didn’t get the chance to take off into a full-blown 3-day mountain of misery… which brings us to…]

3. Migraine – if you weren’t lucky enough to pickup on the first two stages and take action to abort the migraine’s progress, then you reach Stage 3. In this stage you’re likely to have excruciating pain on one side of your head, accompanied with vomiting, vertigo, insomnia, and/or neck pain. The migraine event usually lasts 4-72 hours.

[Here’s a couple of posts describing my first and worst migraines.]

4. Postdrome – is the final stage, where patients feel drained, exhausted, and hungover from their recent migraine experience. A few people feel a sense of elation in this stage, but most patients still have trouble concentrating and often feel moody or depressed. Some patients come out of a migraine attack starving, while others feel too queasy to eat. This stage typically lasts a day or two.

[When I used to only have occasional migraines, I didn’t know the terms that applied to the stages, but I did recognize that post-migraine, I was not myself. I used to describe it to other people as feeling “punch-drunk”, as if I had gone a few rounds in a boxing match with myself and now I felt all beat up and worn out… still nauseous and sooooo tired. (I remember a comment once: “how can you be so tired if you just spent three days in bed?” Ugh.)]

If you’re (un)lucky enough to only have occasional migraines, then more often than not, you get through the four stages and come out the other side… then get on with your life. Even episodic migraines (such as menstrual migraines) can hit you hard then leave you alone.

Unfortunately, chronic migraine is different.

To qualify for chronic migraine (in Australia), you have to be suffering from migraine symptoms at least 15 days a month. That’s a lot of time spent sick from migraine. As a result, sometimes the postdrome feelings can merge with the prodrome symptoms of the next attack… you can feel as if you’re trapped in postdrome, always recovering from the last episode, waiting for the next one to take hold.

I suppose I could say that I felt trapped in prodrome – since I was technically on the cusp of getting another migraine – but for some reason, it’s the post- phase that resonates most with me… a constant state of “ugh… I’m exhausted from all this”.

So what to do about it?

According to BiologyInsights.com, the best ways to minimize the effects of postdrome is:

Prioritize hydration – sip water, electrolyte drinks, or soda if tolerable.

Eat light – focus on bland, easily digestible meals that will nourish your body.

Create a soothing environment – stay somewhere quiet and dark for a while longer to reduce sensory overload, and limit your screen time.

Reduce stiffness and tension – by applying a cold compress to the head or warm compress to the neck and shoulders. Do gentle stretches, or light self-massage.

Medicate carefully – “If residual discomfort or body aches are present, over-the-counter pain relievers, such as nonsteroidal anti-inflammatory drugs (NSAIDs) or acetaminophen, might offer relief if appropriate for your situation. However, typical abortive migraine medications are not always effective for postdrome symptoms.”

[Disclaimer – I’m not a medical doctor – please don’t take medication advice from my site, or others on the internet – see a trained professional for information regarding what medications will help YOU and your migraines, determined in consideration with your individual health situation.]

The BiologyInsights article then points out some other lifestyle changes you can implement which will help postdrome symptoms, and potentially reduce the chance of more migraines:

Regular sleep – aim for 7 to 9 hours of sleep every night, preferably with consistent start and end times.

Exercise – gentle, regular exercise will improve your general health and wellbeing.

Manage your triggers – keep tabs on what triggers your migraines and do your best to minimize those triggers (there’s a free trigger tracker on my REOURCES page.)

and YAY

Mindfulness – try stress management techniques to further improve your wellbeing (click here for my free PDF download for a mini-mindfulness course with lots of ideas to get you started).

Ok – so I know that probably feels like a lot – but it’s all good advice – and all of it has helped me immensely.

If you’re suffering from chronic pain, and migraine postdrome seems like your day-to-day existence – know that I see you, I totally understand – I was you. (Send me a note on the contact page if you’re struggling and want a chat.)

Just remember – I got better, and I really believe that you can too.

Knowledge is power, so keep learning about your condition and stay curious about ways you can help yourself heal.

Hang in there people and take care taking care, Linda xx


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47 responses to “Trapped in migraine postdrome”

  1. Alice in Wonderland Syndrome – The Mindful Migraine Avatar

    […] ago I wrote a post about the four stages of migraine, one of which is called “aura” (here). The sorts of things that happen to migraine patients during the aura stage include: visual […]

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  2. A-Lilu lilule Avatar

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    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      What a lovely idea!

      Like

      1. A-Lilu lilule Avatar

        ⋆.˚🦋༘⋆ Pozdrawiam serdecznie

        Liked by 1 person

  3. The Oceanside Animals Avatar

    Lulu: “Our Dada is pretty good about the consistent bedtimes! Unfortunately they’re not exactly 7 to 9 hours apart …”

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      🙃I’m sure he’s doing his best Lulu!

      Like

  4.  Avatar
    Anonymous

    Postdrome is the worst… I call them my migraine hangovers. I have migraine day safe foods that are usually high in protein so I can feel full without eating too much.

    I have migraines 24/7 usually in the 4-5 on the pain scale so I can ignore it. But when those 9-10 level ones hit the migraine hangover is worse because of all the brain fog.

    This is a really good post explaining migraines.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh no, I’m sorry for your pain 😔 and it really is a hangover, complete with all the down in the dumps vibes that goes with it. Sending healing hugs your way – here if you need a chat, Linda xox

      Like

  5. daylerogers Avatar

    Oh, Linda, I can’t even begin to imagine the depth of pain you experience in these four stages. Awareness is helpful, I’m sure, but being able to circumvent the migraine altogether would be wonderful. Impossible? I appreciate your information–it helps me understand a friend of mine in a way I’ve never understood before. Thank you.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My pleasure… thank you for being the sort of person who cares so much about the wellbeing of others; your friend, your readers, me 🥰

      Liked by 1 person

  6. Tate Basildon Avatar

    Thanks for this. I have headaches for all of my life, and doctors have never been able to decide if I have migraines or tension headaches. They range from mild to intense, but I never have all the symptoms of either together. Now that I have been diagnosed with a benign brain tumor, they think it may be the reason. Either way, chronic headaches suck!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh goodness! It’s a lot to live with for sure, poor you! Hope the pain stays manageable as much as possible. Sending love and understanding your way, Linda xx

      Liked by 1 person

  7. Panda | Barely Upright Avatar

    Thank you for sharing your insight and these migraine hacks. Symptom overlap can make it pretty tedious to tell migraine prodrome apart from other symptom flares, particularly when they’re simultaneous, so this was such an insightful read, that has now helped me put names to some familiar experiences.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’m glad I helped, but sorry you’re going through it 😔💜 but it’s amazing how many of us didn’t have the terms for what we’re going through, you’re not alone! Sending love your way, Linda xx

      Liked by 1 person

  8. richardbist Avatar

    Excellent advice, Linda. While I’ve suffered from migraines over the years, I’ve been lucky enough to only have them sporadically. I couldn’t imagine how crippling it must be to deal with them 15 times (or more) a month.

    Wishing you a wonderful day ahead (or behind, since you’re on the opposite side of the world! ). 🙂

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Tuesday afternoon here 🧡 can’t believe how fast this year is going!

      Liked by 1 person

  9. ☆ Emma Santorini ☆ Avatar

    My migraine comes like a bomb exploding. No “prestage” or what to call it. It comes from nowhere. I wish I knew and had some prestage stages before it explodes so I could prevent it somehow (even though medicines doesnt work).

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      That was me in my 20s and 30s … completely well then bang! Totally sick. Then, in my 40s and 50s it was more of a slow burn. Hope you can guess at what might be some of your triggers … sending love, Linda x

      Like

  10. Susana Cabaço Avatar

    Yes, wonderful advice and very useful information. I surely relate to much of the symptoms and helpers you described. And in a way, your post and actually your blog serve as solace for those suffering from these attacks. And so, a heartfelt thank you, Linda! Appreciate you and your content. Light and blessings your way, today and always 🙏✨💖

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you Susana, happy to help 💜

      Liked by 1 person

  11. Liz Avatar

    This is good information for anyone that needs it.

    When I used to have bad migraines often, it would take 2 or 3 attacks before realising that the flashes of light and how the warning headache felt were my warnings to a migraine attack. Nausea may or may not appear at that point. And I would get fatigue.

    When I wasn’t aware, I wasn’t long before in bed to where it was dark. But when I became aware, I would take my migraine tablet prescribed for me.

    Either way. Whether in full attack. Or caught in time, the fatigue would be there. But if caught too late then in bed rest of the day and I would be very fatigued and feeling hungover the next day. The fatigue would continue for a few days after if very bad.

    I had stress at the time that created those worst attacks. But some attacks were unexplainable.

    Grass and strong scented flowers would do it too. Thankfully neither of these do it now for many years.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Grass! My mother finds strong smelling flowers a problem too, and I find some perfumes tricky, but I have never heard of grass before … it just goes to show how personal our migraines really are! So glad that you don’t have migraines any more – but thank you for still sharing your experiences from when you did – it helps other readers know that they’re not alone, L xx

      Liked by 1 person

      1. Liz Avatar

        Yes
        The grass just affected me when it was not long cut.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          SO interesting – every time I think I’ve heard it all, someone comes up with a new trigger – our brains can be annoying, but they’re also super cool when you think about it! Hope the week ahead is a good one, good luck with your radio-hunting! xx

          Liked by 1 person

  12. Looking for the Light Avatar

    Great information to share with people who are just learning about their migraines or those who have forgotten. It’s easy to do when you having migraines everyday. I didn’t care about the why’s or stages, just how to end the pain. Luckily after 2-3 yrs. my doctor find the cause of my migraines and a simple surgery corrected the problem and not one migraine left. Maybe it’s time to repost that one as a reminder it’s not always migraines but other health issues creating migraines. I so blessed the days are in the past. I’m always wishing you an answer to at least make the pain less or less often.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Hey lovely! My migraines are getting less and less – not an easy answer like yours, but slow adjustments to many parts of my life. I think it’s a great idea to post your info again; for some people there’s a single aspect of their being that needs tweaking, and that’s enough! If you do, let me know and I’ll do a shout out for you – or happy to post it as a guest post if you like on my site – it’s always inspiring to know that we can get better! L xx

      Liked by 1 person

      1. Looking for the Light Avatar

        I have it in my drafts to repost. I’ll work hard to remember to let you know what day this week I’m publishing. 🙂

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          No problem… stay at your own pace your own way 🥰

          Liked by 1 person

          1. Looking for the Light Avatar

            It was posted this morning. 🙂

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              Great – I’ll pop over! xx

              Liked by 1 person

  13. Johnbritto Kurusumuthu Avatar

    Such a thoughtful and informative post — your explanation of each migraine phase is so clear, and your honesty about living with chronic pain is truly comforting and encouraging.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you as always for taking the time to read my posts!! 🌸

      Liked by 1 person

      1. Johnbritto Kurusumuthu Avatar

        🤝🙌🌷

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🥰

          Liked by 1 person

  14. Chris Avatar

    Thank you for sharing. My wife and daughter get migraines but not very often. They seem so strange.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Migraines ARE odd – there’s a whole cascading series of events going on in our bodies that create strange zombie-like-symptoms…!! Sending healing vibes to your loved ones – may this week continue to be pain-free! L xx

      Liked by 1 person

      1. Chris Avatar

        Thank you for your kind words. I’ll pray that you also have a pain free week.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Thank you 🧡

          Liked by 1 person

          1. Chris Avatar

            You’re welcome.

            Liked by 1 person

  15. Sara Allwright Avatar

    Very informative post…thanks for sharing your knowledge! 👍
    I have all stages…thankfully I do not have them often but it’s important to be aware of these stages. 🧡

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Good on you! Even when I didn’t have migraines often (when I was younger) I had NO CLUE about the stages and what was happening – knowledge is power – starting to understand what’s going on when can help you manage migraines better. Here’s cheers for being a curious cat with me! L xx

      Liked by 1 person

      1. Sara Allwright Avatar

        Thank you Linda! 😊😻
        Indeed, knowledge is power 💪xx

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          👏🥰👏

          Liked by 1 person

  16. KikiFikar Avatar

    Good evening! I can’t believe the timing of your blog in that I was literally just researching the postdrome effect of the migraine. I had never heard of it before today and now I find it through my research and through your blog. I have been suffering from horrible migraines from a car accidentI had 2 1/2 years ago. I am meeting with a new neurology team tomorrow in hopes of finding some type of relief and sleep. Thank you for this piece! It really hit home for me as there are so many similarities!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      How bitter-sweet this is … I’m thrilled this information has found you at the right time, but sad that you need it! Sending best wishes for your appointment with the new neuro team tomorrow – don’t forget to write down any queries you have (I always get flustered on the day and forget!) Here if you ever need a chat, L xx

      Liked by 1 person

  17. carrieannbiondi Avatar

    Thank you for again describing migraines in such rich and helpful detail. Having had to deal with severe migraines of the sort you describe for more than forty years, I recognize all of what you write about in this post. One way I have described to others the 1-2 day postdrome phase (which I didn’t know had a special name until this post!) is feeling like I have been hit all over my body with a bag of rocks.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh gosh – feeling beaten up by a bag of rocks is SO real! I never used to have a phrase for it either, I just knew it was better than having the head agony, but somehow still miserable! Sorry you’ve had them for 40 years (mine are just as old, but on-again off-again). Hoping that today is a good day for you, Linda xx

      Liked by 1 person

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