My migraine story

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I have experienced migraines since I was 11 years old. In the early years they only appeared occasionally and did not have a major impact on my life. In my thirties however, they became more regular, and I began to experience hemiplegia (stroke-like symptoms). In my forties I was occasionally hospitalized for treatment and in my worst attack, I broke three of my teeth from grinding through the pain. A little over two years ago, I was diagnosed with chronic migraines, and I currently have permanent pain around one eye that hasn’t ‘switched off’ at any time in the last 3 years. As a result, I have had to cut back on parenting, driving, working, studying and socializing. 

About two and a half years ago, after exhausting medical interventions with my doctors, my neurologist recommended that I follow a more holistic approach.

Through a self-directed journey of exploration, I have been experimenting with a variety of alternative approaches, including: breathing exercises, Tai Chi, Qigong, mindfulness meditations, Yin Yoga, stretching and massage, fitness routines, dancing and daily walks. 

By following a loose program, the combination of activities all appear to have helped in their own way, and combined they seem to be having a significant effect. My migraines have reduced in frequency, severity and duration. Since transitioning from 3+ migraine days a week (every week for over a year), to 1 migraine day every 3 weeks, (with occasional setbacks), I wanted to share some of the links that have helped me.

[LATE 2025 UPDATE – the pain in my eye is almost all gone, and I only get a full-on migraine about once a month – I’ve improved SO MUCH that I was able to recently complete my PhD (graduation pictures here!).]

There’s only two ‘rules’ that I’ve applied throughout this self-help healing process: 

  1. TRY A VARIETY OF THINGS – after checking in with your health professional what’s suitable for your individual circumstance, attempt lots of different links in this blog. You want to get better – so even if you think what they’re doing in the video looks strange – have a go.  Some of the weirdest videos have been the ones that have helped me most (like gently tapping my sore head with my fingertips).  If you like a video, check to see if they have others on their channel for more ideas.  Start with the shortest videos to get a feel for the techniques, then move to longer sessions.  Soon you’ll be practicing many of the ideas you learn randomly throughout the day.  The aim is to eventually spend 60 minutes a day, every day, employing the empowering self-help techniques. 
  2. BE KIND TO YOURSELF – trust your intuition and listen to your body; if something makes you feel worse then slow down or stop.  If you can’t do what they’re doing in the video (the teachers are fitter and more flexible than we are) just modify the moves they’re doing until they change to the next move.  Also, some of the dance and Tai Chi moves require more coordination than I have, so just do your best, smile, and be proud that you’re having a go; 5 minutes of uncoordinated self-help is better than no minutes – yay for you!  

That’s my migraine story – I’d love to hear yours down below in the comments if you’d like to share.

Here’s hoping you’re getting better.

Take care taking care, Linda x 

PS. The links to try are embedded in the separate blog posts. If you enjoy a particular approach, then you can tap on the tab at the top of the post to move through similar posts (such as ‘strategies’, ‘movement’, ‘music’ and so on). 

PPS. Posts that are labelled ‘Linda’ include personal updates. It’s been a long journey and whist I’m not pain-free, I am grateful to be learning how to live a more-pain-less-life through a more mindful approach to my migraines. 

(DISCLAIMER: Please be sure to speak to your health care provider before making any lifestyle changes – I am not a medical doctor – I am only writing about what has and hasn’t worked for me as an individual migraineur.)

If you’re on your own healing journey, or keen to start, feel free to join The Mindful Migraine community as we work together to reclaim our health and transform our lives – subscribe below:

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I suffer from chronic migraine – at The Mindful Migraine blog I share some of the ideas that have helped – I hope they help you too.

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146 responses to “My migraine story”

  1. WanderingCanadians Avatar

    Oh gosh, sorry to hear that you’ve been experiencing migraines since you were 11 and that they only got worse. I’ve only had a migraine a few times and even then I’m not even sure whether it was a migraine or just a really intense headache. My younger sister suffers from migraines though. Glad to hear you’ve found some strategies to reduce the effect. Take care. Linda.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you kindly! 💜and good luck to your sister!! Xx

      Liked by 1 person

  2. Keep Calm & Drink Coffee Avatar

    I am lucky and I don not suffer migraine but I want to send you a big hug.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      And I will happily take that big hug and thank you for it from the bottom of my heart! xxx

      Liked by 1 person

  3. odylicious (Val) Avatar

    Hello and thank you for your comment on my blog. I’ve had migraines for over 50 years now, and I can so relate. They were bad in my 20s and worse in my 30s. I had them for 3 to 4 years daily and had my windows covered with foil to keep out the light in my room for when I had a bad one, 2 to 3 days duration. I’ve been through 7 neurologists and countless other doctors looking for relief. I eventually had to go on disability for them. I had a 6 week treatment of IV DHE-45 which took away the daily migraines, but they gradually came back less frequent. I’ve been in pain management for about 30 years for migraines and then back /neck pain, etc. Topamax was the first thing that ever worked on me about 15 years ago, and I was also put on a fentanyl patch around that time too. I have since weaned myself off the patch about 3 years ago. I just went on Qulipta a month or so ago, as the Aimovig wasn’t helping and the Qulipta seems to be working pretty good. I’m going to try some of the things I’ve read about here as well. I’ve been through a lot in my search for relief, including a temple injection that didn’t help and a botched spinal tap which landed me in the hospital for 5 days in agony with a spinal headache (worse than childbirth). I look forward to learning more here.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Gosh! That is a lot of pain to go through… I’m so sorry for you. Can I just say though – you are so resilient, so strong – truly, wow. I just love that you never give up against this rotten old glitchy diagnosis – hat’s off to you!

      I was pretty much at a point of giving up in total despair when I decided to try the mindfulness approach. I think it has become a bit commercialized / popularized by influencers, so I was skeptical. But some of the most basic things really have calmed my innermost nervous-system down. I’m beginning to see a light at the end of the tunnel. I’m not so driven to be “pain-free” anymore, I’ll just settle for less-pain and more-joy.

      Fingers crossed that you find something that helps. Here if you ever need a chat. Linda xox

      Like

  4. motionmasquerade Avatar

    I too suffer from chronic migraines with what my neurologist calls “seizure auras.” Now, in my late forties (and perimenopausal), they are growing worse. Just yesterday I had an appointment with my doctor (who is phenomenal) and she is frustrated with the fact that my <em>other</em> doctors don’t seem to care about checking the side effects of medications before prescribing them. Still, she is concerned with the rapid increase in activity I’ve experienced and has ordered an EEG and an MRI (with and without contrast) later this month to check for anything unusual. My headaches interfere with every aspect of my life — especially school — and I look forward to reading about your experience.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh no, I’m so sorry to hear this! On the upside (and I know it might not feel like there is one some days), you sound like you have a neurologist who’s on your side and taking immediate action – that’s a big win! The trick now is to stay calm, it sounds lame, but as I got sicker I started to panic, got more anxious, erratic and defensive… the problems escalated. Imagine your pain-brain doing a welfare check; it sees that there’s an issue and it always exaggerates the drama… practice your deep breathing, practice talking to your pain, stay as positive as possible – don’t give your pain-brain any more reason to freak out. Wishing you all the best on your journey. Sad that you’re sick but glad that you found this little corner of the internet; you’re always welcome. Feel free to reach out if you need a chat. Linda xox

      Liked by 1 person

      1. motionmasquerade Avatar

        Thank you so much for your kind words and willingness to chat. I find that having a community — in any form (be it virtual or in “real life”) — of people who understand what you’re going through can make a big difference when it comes to healing. I will definitely be following (and paying close attention) to your posts. 🫂

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🥰

          Liked by 1 person

  5. Kymber Hawke Avatar

    Thank you for sharing your story. I suffer from migraines. I’m in a strange position as I take Tramadol for pain, and Tramadol can give you migraines, says my neurologist. So I have to choose body pain or head pain. I choose body pain and only take the Tramadol when I really really need it.

    Liked by 2 people

  6. nandasagec Avatar

    Thanks you for sharing and taking up this issue. I too suffer from migrane. But the worst was before 2 years back. I could not even sleep becauae not only headache but behind ears and eyes also pains a lot….cannot go out much during afternoon. It was terrible.. Then stated taking medication and now i sometimes go through it but not like the earlier worst condition..

    I pray to God nobody should suffer from it..

    Thank you.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh no! It is always so sad to hear of others who suffer – like you, I would not wish this pain on anyone else.

      I am glad that you are finding some relief. I find that a combination of medical treatment and mindfulness has made a huge difference for me. I still have pain behind one eye, but the really bad days seem to be behind me (fingers crossed).

      I’m thrilled that you found the site, and I hope that you find some advice here that helps, and lets you know that you are not alone in your healing journey! You might even have some advice for the rest of us now that you are doing so well!

      Take care, Linda xox

      Liked by 1 person

  7. worldphoto12 Avatar

    BUON POMERIGGIO LINDA

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      ❤️

      Liked by 1 person

      1. worldphoto12 Avatar

        🙂

        Liked by 1 person

  8. Ashley Avatar

    Hi Linda, I have not experienced migraines since my teenage years (I’m now in my 70s). Nevertheless, I continue to be troubled with lower back pain since my 30s & find that, like you, a more holistic approach to life has helped greatly. Regular exercise & in particular, Qi Gong, have been the best thing that has helped me survive. I’ve subscribed to your posts & send blessings & good luck from Northern Ireland. 💓🤗🙋‍♂️🍀

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      How wonderful! Not the chronic pain part (obviously 🙃) but the bit about finding healing through Qigong. I mix up my homemade Tai Chi routine in the mornings with Qigong moves, and it’s helped my migraines but also my dodgy old hip.

      You’ve probably found her already, but Kseny Gray is my favorite online teacher (https://ksenygray.com/) – I love all her routines. There’s also a page here on my blog with more links if you’re curious: https://themindfulmigraine.blog/2024/01/17/qigong/.

      I’m so glad you found me on the other side of the world, and just a click-away; you’re always welcome here! Linda xxx

      Liked by 1 person

  9.  Avatar
    Anonymous

    I experienced one migraine EVER when I was 14 and I will never forget it even though it was close to two decades ago. I could not imagine the strife of those suffering through a lifetime of these. I pray for your healing, Linda! I’m glad you have found some new remedies that you are looking forward to using. 🙂

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      One!!!! I can’t even imagine. It must have been terrifying at the time – you must have thought you were having a stroke or a brain aneurism! Thrilled that you’re done and dusted though, and thanks so much for your encouragement, it means a lot to me! Linda xxx

      Like

  10.  Avatar
    Anonymous

    I’m 60 now and migraines have been a way of life since I was 17 ( after I had a brace fitted on my teeth). I’ve had tests on my neck and nerve tests, but the doctors didn’t think it had anything to do with the jaw and dismissed me as being a silly woman to suggest it.

    So it wasn’t until I was 50 years old that a doctor told me to get a mouth guard because I probably grind my teeth. And he was right. x-rays showed the bone one side of my jaw had shifted and I have arthritis. And my face is aysmetrical. I have Temporomandubular disorder

    Migraines can develop from bad fitting braces orthodontics, when the bite (osculation) is not aligned properly. I see people now in their 40’s 50’s getting invislgn because they want perfect straight teeth. I think it’s risky. i could have lived with my crooked teeth.. But instead I have mild headaches most of the day and at the worse migraines and a sore face and little social life as I feel mostly tired all the time

    So to the readers of this blog check out your bite at a dentist, but go to a proper TMJ dentist.

    Thanks for all the information in the blog Linda.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Hi, thanks for being here and telling your story – it’s always so bitter-sweet to hear the tales from Team Migraine – nice not to be alone, sad that we’re all going through this.

      My teeth only became a problem in the last few years. About 4 years ago I broke 3 during a migraine attack from gritting through the pain. I found out that I also grit my teeth at night, so I now have 3 crowns which are fragile and I have to wear a nightguard (to sleep and during attacks). Wearing it over the last two years means I haven’t broken teeth, but I also haven’t relaxed my jaw muscles which I suspect is part of the chronic migraine problem. The mouth guard has also shifted my teeth and jaw as you noted, which in turn has affected the way I eat (my front teeth no longer align, so can’t tear through food, I have to side-eat some things).

      I’m with you though – if you’re a migraine person, definitely speak to your dentist and a specialist if required – your mouth, as weird as it sounds – is part of your overall health, which in turn affects your brain-health.

      So glad you found me in the wide-deep-internet… feel free to comment whenever/wherever you like – I love hearing from others who are travelling the same, albeit unique, path as me. Linda x

      Like

  11. Jacqui Murray Avatar

    Yours are worse than mine on my worst days and I thought I was living in h***. I had them for 30 years, several a week for days at a time. Lots of therapies didn’t work. Botox helped. Aimovig got rid of them mostly. I’m so happy to hear yours are on the run.

    3 broken teeth! I can’t even imagine that sort of pain. Maybe the one that’s worse than childbirth.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      I think everyone’s pain is so unique… and variable. I’ve been known to go to work with a migraine but roll around on the floor dramatically when I stubbed my toe! Pain is also often forgettable (toothache and child birth), but I wonder if even though we move on, if it doesn’t leave a sort of scar/memory that increases general anxiety…?

      I started Botox at the same time as mindfulness and I think they are both part of the success story. The nice thing about mindfulness is that I can carry it forward for the rest of my life.

      Best wishes and thanks for being here, Linda x

      Liked by 1 person

  12. marylou Avatar

    Migraine is horror

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Agreed 🫠

      Like

  13. Diti Sen Avatar

    Thanks for sharing these very helpful experiences. Migraines have become common now due to stressful situations and any knowledge about healing them holistically is a blessing , even for people like me who don’t suffer from them.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you – by writing here and reading people’s replies, I have come to realize that, as you say, we are all becoming increasingly overwhelmed, and that this stress manifests itself in our bodies in different ways for different people. I think ‘mindfulness’, which used to be treated as something childish or esoteric, will become increasingly helpful for our health. Thank you so much for visiting, I really enjoy visiting your beautiful blog. Linda x

      Like

      1. Diti Sen Avatar

        Thank you so much. I really appreciate your kindness. Yes, mindfulness is actually one of the best ways to calm the mind and ensure optimum, mental and physical health. Buddhists have practiced it for years as a meditative practice and the benefits are there, for all to see. These are age old ways which heal without medicines or side effects.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          I find it reassuring that we are returning to the ‘wise old ways’, it will take awhile for it to feel ‘natural’ however, as we were taught nothing like it in our younger years, but that is slowly changing. Best wishes, Linda x

          Liked by 1 person

  14. Mike U. Avatar

    For several years, I experienced migraines two or three times a week, some of which lasted for three days regardless of what type of OTC meds I took for the pain. I had some fused vertebrae in my neck, and my symptoms aligned with those of occipital neuralgia (right side of head only, feverish sensation running down along my head and neck, felt like a burning ember was lodged behind my right eye, sensitivity to light and sound, nausea at times). At the time, they seemed to be triggered when I’d turn my head and my neck would pop or grind, resulting in a pinched nerve. I also have high blood pressure which possibly contributed to them. Eight years ago, I moved to a different location and the migraines inexplicably disappeared. I’ve had maybe one or two since then. I can’t explain it, although altitude may have something to do with it as my previous location was 7,000 feet elevation and my current locations is just under 6,200 feet. Obviously, I don’t miss the migraines, but it’s a bit of a mystery as to why they suddenly stopped even though my vertebrae remain fused and I still have HBP.

    I sincerely hope you find relief for your pain soon. It’s definitely no fun battling migraines. 😊

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Wow – so much that resonates. I too have the ‘burning ember’ behind my right eye (it’s been 24/7 for 2 years now – but thankfully I’ve been able to eliminate a lot of the other migraine symptoms). I suspect that all migraine people are ‘human barometers’, but I hadn’t thought of moving up a mountain to cure myself… I guess it’s also possible the move brought about a release of other stressors in your life at that time. Migraines sure are glitchy beasts. So pleased you’ve left them (mostly) behind, and here’s hoping your neck doesn’t give you too much bother. Linda xx (PS I enjoyed the poetry on your blog very much!)

      Liked by 1 person

      1. Mike U. Avatar

        Oh, I was under a lot of stress during those migraine years, too, and when I relocated things changed pretty drastically. I suppose the stress definitely could have been a trigger as well.

        Thank you for the kind words regarding my blog. I’m truly grateful, and I’m happy to know you enjoyed my poetry. 😊

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          👏❤️👏

          Liked by 1 person

  15. V. Sparrow Avatar

    You have a wonderful smile, Linda–very “approachable”. I’m sorry about your migraines, wow… I have chronic headaches, since childhood (and other chronic pain now that I’m OLD), but they’re not migraines. I don’t see that it makes much difference what we call them–significant pain levels are a challenge, and they definately affect quality of life. Take good care of YOU! I’m praying for your healing.😊

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you! Our little repartee between the two blogs has warmed my heart. Keep smiling, and I look forward to staying in touch. Linda xx

      Liked by 1 person

      1. V. Sparrow Avatar

        “Repartee” is a wonderful word!😊

        Liked by 2 people

  16.  Avatar
    Anonymous

    I feel that the way to clarity and solution all share something in common, the open mind, the experiment and the neutrality of the perspective. Inspiring to read your story.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you, you’re always welcome here.

      Like

  17. Sierra Ergundogdu Avatar

    I feel like I just read my own story! I too get this type of migraine, and have had a great deal of success with non-medical solutions such as meditation, breathwork, yoga, and stress management. I’m so glad you are spreading this information!

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Fantastic! (Not about the migraine part; the bit about having success with your holistic healing!) It’s definitely not as easy a path as taking a pill, but I feel like the benefits of the non-medical solutions will help us in all aspects of our life into the future. Thank you for reading and reminding others that it’s possible. Linda x

      Like

  18. stay_mentallyhealthy Avatar

    You have a great blog sweet. Thank you for your comment on mine too. I think I finally found a website that explains everything about migraines ❤️❤️

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Welcome; I’m so happy you found somewhere that feels right for you. I can’t claim to know everything about migraines but I certainly have had more than a few, and I have lots to say about them. Take care, Linda x

      Liked by 1 person

  19. Dianne Lehmann Avatar

    Thank you for liking my post. I’m always interested to hear about others’ migraine headache experiences.

    For the most part, I am free of them these days. But there was a time I had them every day. That lasted about four years. Doctors were of no use. I did my own research and ate an elimination diet. Then did food challenges. Then I figured out the environmental triggers. And finally, I went to biofeedback for help with muscle tension triggers.

    I can probably imagine what you have had to go through to get it all figured out. I hope that some day you can say that you are basically free of migraines.

    I only get them very occasionally now and that is only if I cannot somehow avoid too much exposure to artificial fragrances.

    Liked by 3 people

    1. the mindful migraine Avatar

      Thanks Dianne,

      The idea of ‘a migraine a day for four years’ made me teary; it’s almost too horrible to imagine. So relieved you’re better, and super impressed at how empowered you were to figure it all out on your own. In a world where everything is becoming increasingly artificial, here’s hoping your world stays as fake-fragrance-free as possible.

      Best wishes and thanks for being brave enough to share, Linda x

      Liked by 1 person

  20. Jennifer Barraclough Avatar
    Jennifer Barraclough

    Thank you for liking my recent post. I was very glad to read that holistic therapies have helped so much with your migraines – and that you have a neurologist who is so open to them. If you feel like contributing a short piece on this subject to the book I am writing, id be pleased to hear from you Jennifer.barraclough@gmail.com

    Liked by 2 people

    1. the mindful migraine Avatar

      Thank you Jennifer; it is unusual to hear a doctor say ‘more medicine’ doesn’t equal ‘less pain’. I’ll stay in touch 🙂

      Liked by 1 person

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