My migraine story

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I have experienced migraines since I was 11 years old. In the early years they only appeared occasionally and did not have a major impact on my life. In my thirties however, they became more regular, and I began to experience hemiplegia (stroke-like symptoms). In my forties I was occasionally hospitalized for treatment and in my worst attack, I broke three of my teeth from grinding through the pain. A little over two years ago, I was diagnosed with chronic migraines, and I currently have permanent pain around one eye that hasn’t ‘switched off’ at any time in the last 3 years. As a result, I have had to cut back on parenting, driving, working, studying and socializing. 

About two and a half years ago, after exhausting medical interventions with my doctors, my neurologist recommended that I follow a more holistic approach.

Through a self-directed journey of exploration, I have been experimenting with a variety of alternative approaches, including: breathing exercises, Tai Chi, Qigong, mindfulness meditations, Yin Yoga, stretching and massage, fitness routines, dancing and daily walks. 

By following a loose program, the combination of activities all appear to have helped in their own way, and combined they seem to be having a significant effect. My migraines have reduced in frequency, severity and duration. Since transitioning from 3+ migraine days a week (every week for over a year), to 1 migraine day every 3 weeks, (with occasional setbacks), I wanted to share some of the links that have helped me.

[LATE 2025 UPDATE – the pain in my eye is almost all gone, and I only get a full-on migraine about once a month – I’ve improved SO MUCH that I was able to recently complete my PhD (graduation pictures here!).]

There’s only two ‘rules’ that I’ve applied throughout this self-help healing process: 

  1. TRY A VARIETY OF THINGS – after checking in with your health professional what’s suitable for your individual circumstance, attempt lots of different links in this blog. You want to get better – so even if you think what they’re doing in the video looks strange – have a go.  Some of the weirdest videos have been the ones that have helped me most (like gently tapping my sore head with my fingertips).  If you like a video, check to see if they have others on their channel for more ideas.  Start with the shortest videos to get a feel for the techniques, then move to longer sessions.  Soon you’ll be practicing many of the ideas you learn randomly throughout the day.  The aim is to eventually spend 60 minutes a day, every day, employing the empowering self-help techniques. 
  2. BE KIND TO YOURSELF – trust your intuition and listen to your body; if something makes you feel worse then slow down or stop.  If you can’t do what they’re doing in the video (the teachers are fitter and more flexible than we are) just modify the moves they’re doing until they change to the next move.  Also, some of the dance and Tai Chi moves require more coordination than I have, so just do your best, smile, and be proud that you’re having a go; 5 minutes of uncoordinated self-help is better than no minutes – yay for you!  

That’s my migraine story – I’d love to hear yours down below in the comments if you’d like to share.

Here’s hoping you’re getting better.

Take care taking care, Linda x 

PS. The links to try are embedded in the separate blog posts. If you enjoy a particular approach, then you can tap on the tab at the top of the post to move through similar posts (such as ‘strategies’, ‘movement’, ‘music’ and so on). 

PPS. Posts that are labelled ‘Linda’ include personal updates. It’s been a long journey and whist I’m not pain-free, I am grateful to be learning how to live a more-pain-less-life through a more mindful approach to my migraines. 

(DISCLAIMER: Please be sure to speak to your health care provider before making any lifestyle changes – I am not a medical doctor – I am only writing about what has and hasn’t worked for me as an individual migraineur.)

If you’re on your own healing journey, or keen to start, feel free to join The Mindful Migraine community as we work together to reclaim our health and transform our lives – subscribe below:

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I suffer from chronic migraine – at The Mindful Migraine blog I share some of the ideas that have helped – I hope they help you too.

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144 responses to “My migraine story”

  1.  Avatar
    Anonymous

    so sorry for all the pain you’ve been through.

    I get occasional migraines. They seem more frequent when I’m stressed or not sleeping enough, but get them.other times too. I’ve learned to catch them early on and take ibuprofen right away, that helps them be less intense.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Yay you! Not for getting sick, but for understanding where your migraines come from and how best to treat them – that’s very cool! 💜

      Like

  2. Melody Jacobs Avatar
    Melody Jacobs

    What a difficult journey you’ve had, and reading about the permanent pain and sacrifices really hits home. It takes such quiet strength and determination to pivot to a self-directed, holistic approach after exhausting traditional medicine. That massive reduction in migraine days speaks volumes about the power of consistency and kindness to yourself. Thank you for the reminder that even the simplest, most unconventional things like gentle tapping can be the breakthrough we need.

    Like

    1. The Mindful Migraine Blog Avatar

      Oh! You’re so welcome! Here’s hoping that you aren’t too sick, and that whatever methods you’re employing are working for you. Here for a chat if you ever need one! Best wishes, Linda xx

      Like

  3. indianeskitchen Avatar

    What a relief to have had relief. They keep telling me to exercise but anything I do physically puts me in bed for days. Thinking about pain management next.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      It’s so tricky – I was told to do exercise as well – but when I was at my sickest, the movement made my head worse, and my tummy sick – so I started with things like Chair Yoga, and Tai Chi – now I’m a lot more upright. Pain Management techniques are good, anything that breaks the pain-fear cycle is best. Here if you ever need a chat. Hope you’re OK, L xx

      Like

  4. emilykarn64 Avatar

    I sympathize with you. I had migraines in my teens and twenties. The ones in my teens were caused by the bright fluorescent lights at my high school. I got tinted glasses and they went away. The ones in my late twenties were caused by stress. My doctor gave me some wonderful pills that knocked me out for several hours, so that I could recover. I changed some things in my life, the stress went away and so did the migraines. Thankfully I haven’t had one in thirty years. Good luck to you.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thanks for the well wishes – if you know you know – I’m so thrilled that you were able to control yours and they haven’t come back, that’s really exciting to hear, it gives the rest of us hope! Stay well, and thanks for visiting! xoxox

      Liked by 1 person

  5. william sinclair manson (Billy.) Avatar

    A horrific disease… thanks for sharing this.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      you’re welcome – hope it helps those who live with it feel seen, and raises awareness for those who are lucky enough to avoid migraines! Thank you so much for being here – I really appreciate it! L 🙂

      Liked by 1 person

      1. william sinclair manson (Billy.) Avatar

        I dont suffer from migraines thank goodness but with my condition I get a lot of headaches and yes it helps.. thank you.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🥰

          Liked by 1 person

  6.  Avatar
    Anonymous

    Seeing your progress truly fills my heart with joy. I’m so proud of the strength you’ve shown, and you have all my love and best wishes as you continue to get better.- love Aparna

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh thank you! That means the world to me Aparna – it’s the encouragement from all of you that keeps me going, stay well my friend, Linda xoxox

      Like

  7. Forestwood Avatar

    Architects and metaphors- what an interesting topic. My son achieved his phd after 3 years full-time, so I can only imagine what it feels like after 5 years work. Well done!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank yo – and congrats to your son!!

      Liked by 1 person

  8. Forestwood Avatar

    Later in the year would suit me better, too. I am busy for the next few months and have to get the magazine columns written up before I go on holiday. We can revisit around Xmas or early next year when Uni is on a break? May I ask what your PhD research area is?

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Perfect! I am almost finished after 5 years, researching how architects use and abuse metaphors!

      Liked by 1 person

  9. Forestwood Avatar

    Happy to write up a guest post for you. We could reciprocate if you wish?

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’m still finishing my PhD so I don’t have huge amounts of time for extra writing at the moment… but if you want to send me an email at themindfulmigraine@outlook.com we can chat about a guest post from you (I have one lined up for this month – so it wouldn’t be needed for a while yet). L xx

      Like

  10. Forestwood Avatar

    Linda, this sounds like a dreadful way to live your life – constantly in pain so I am really heartened to read that you have found in part some solution. Many people use the word migraine loosely but it is not the debilitating condition you describe. I used to have severe headached that were ameliorated when I hit menopause and are triggered now by caffeine withdrawal or eating a salty meal/not enough water the previous day. Coincidentally, I also find Yoga and Qi gong and meditation (via an app) works to reduce the tension in my body.

    Glad to meet you here on the blogosphere and follow your journey in finding a solution to your migraines.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh thank you! That means a lot to me – you’re always welcome here – and if you ever want to share your mindfulness journey, I’m happy to publish a guest post to let others know that it works for you (the more voices the better in my mind!) xx

      Liked by 1 person

  11. Jacqui Murray Avatar

    I had about 30 years of migraines until I finally found a drug and holistic solution–Aimovig and exercise. I’m glad yours are improving!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Botox and mindful movement have been the two biggest helps for me I think (but I suspect I also have to get onto the other side of perimenopause to be free of the hormone fluctuations to really leave the headaches behind!) Thanks for popping by – I’m THRILLED that your migraines are in the past for you – it’s super inspirational for all of us to read that there is hope! L xx

      Liked by 1 person

      1. Jacqui Murray Avatar

        Botox was my first huge step forward, too. What a life changer that was!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          I’m about to start additional injections on my jaw next month (I’m a little nervous, but I like the doctor, and the other injections on my head and neck made a big difference, so I’m hoping it helps reduce the tension in my face!) L xx

          Liked by 1 person

  12. Tanja Avatar

    Sorry to hear that you have migraines

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh thank you – they’re getting better, but it’s a pretty hideous condition. Hope the weekend is a good one, thanks for taking the time to visit, it means a lot to me, Linda xox

      Liked by 1 person

  13. equinoxio21 Avatar

    Migraine’s a bitch. Didn’t have it until early 40’s… Your global approach sounds good. (I mentioned Vydura in another post, have you heard of it?)

    Be good.

    Brian

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thanks Brian – I looked it up, it’s another brand name for our “rimegepant” – Botox and mindfulness seems to be helping me though at the moment… I’m soooo close to being pain free! Linda xx

      Liked by 1 person

      1. equinoxio21 Avatar

        Best wishes… 🤗

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🥰

          Liked by 1 person

  14. Holistic Wayfarer Avatar

    We soldier on.

    Love and light.

    Liked by 1 person

  15.  Avatar
    Anonymous

    Have you ever tried the Silva Method? It does wonders for my headaches. In his book there is a story about a man who got rid of his cluster headaches. I would recommend to do online course though!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I haven’t tried his specific method, but his ideas about brain waves and visualizations are familiar with other practices that I do. I’ll look into it, thank you, Linda xx

      Liked by 1 person

  16.  Avatar
    Anonymous

    Thank you for sharing your story of pain and recovery, this is incredibly helpful 🧡🧡🧡

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      You’re so welcome – I hope to see you here as often as you need us! Linda xox

      Like

  17. Scricciolo Avatar

    Condivido la mia esperienza. Anche io ho sofferto una vita di emicrania, di quelle potenti e invalidanti, ma essendo anomale, venivo presa poco in considerazione, anche se mi hanno fatto seguire tanti percorsi medici che non sono serviti a nulla. Dopo una vita di sofferenze e di grande forza di volontà per fare comunque quello che desideravo, sono arrivata “per caso” alla diagnosi. Un giovane neurologo con un visita (non solo parole) mi ha detto in mezz’ora quale è il problema. Non è risolvibile, ma con uno stile di vita particolare, le crisi non si presentano più. Sono ovviamente contenta di non soffrire più come in passato (alcune volte ricapita in modo pesante, ma raramente), ma sono soprattutto felice di aver capito da cosa dipendesse. C’è una motivazione che spiega tutti quei miei strani sintomi. Ne avessi avuto consapevolezza prima avrei avuto una vita sicuramente diversa, ma ben venga averlo saputo ora. Ho sempre avuto un po’ di risentimento nei confronti del “mio corpo” che mi limitava tanto, mentre la mente era sempre molto attiva- Ora, sapendo cosa ha subito per tanti anni e cosa ha rischiato, gli porto assoluto rispetto e lo “ringrazio”.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I hear you – and see you – our journeys are different, but do overlap (especially the times of self-resentment towards our bodies). Take care lovely, and hopefully you are in a place of less pain at the moment, thinking of you and sending you digital hugs, Linda xx

      Liked by 1 person

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