My migraine story

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I have experienced migraines since I was 11 years old. In my younger years, they only appeared occasionally and did not have a major impact on my life. As such, I’ll be brutally honest and admit that I never attempted to understand the migraine diagnosis, my symptoms, triggers, or treatment options.

In my thirties however, they became more regular, and I began to experience hemiplegic migraines (which includes stroke-like symptoms that made it hard to walk and talk). In my forties I was occasionally hospitalized, and in my worst migraine ever I broke three of my teeth from grinding through the pain. 

Not long after my 50th birthday, my migraines began to occur almost daily, and I was diagnosed with chronic migraine. I experienced permanent pain around my “migraine eye” (that did not ‘switch off’ for 3 years), and full-blown migraines (where I was bed-bound, projectile vomiting, experiencing paralysis, and debilitatingly sensitive to light and noise) for approximately 3 days a week, every week, for over a year. As a result, I had to cut back on parenting, driving, working, studying and socializing… I slowly lost all sense of myself and began to despair. 

About two and a half years ago, after exhausting medical interventions with the general practitioners, my neurologist recommended that I follow a more holistic approach towards self-healing.

Through a self-directed journey of exploration, I have been experimenting with a variety of alternative approaches, including: breathing exercises, Tai Chi, Qigong, mindfulness meditations, Yin Yoga, stretching and massage, as well as gentle fitness routines, dancing and daily walks. 

By following a loose program, the activities all appear to have helped in their own way, and combined they had a significant effect. My migraines have reduced in frequency, severity and duration… hooray!! 

Since transitioning from 3+ migraine days a week (every week for over a year), to 1 migraine day every 3 weeks, (with occasional setbacks), I wanted to share some of the activities that have helped me.

[LATE 2025 UPDATE – the pain in my eye is almost all gone, and I only get a full-on migraine about once a month – I’ve improved SO MUCH that I was recently able to complete my PhD (graduation pictures here).]

There’s only two ‘rules’ that I’ve applied throughout this self-help healing process: 

  1. TRY A VARIETY OF THINGS – after checking in with your health professional what’s suitable for your individual circumstance, attempt lots of different links in this blog. You want to get better – so even if you think what they’re doing in the video looks strange – have a go.  Some of the weirdest videos have been the ones that have helped me most (like gently tapping my sore head with my fingertips).  If you like a video, check to see if they have others on their channel for more ideas.  Start with the shortest videos to get a feel for the techniques, then move to longer sessions.  Soon you’ll be practicing many of the ideas you learn randomly throughout the day.  The aim is to eventually spend 60 minutes a day, every day, employing the empowering self-help techniques. 
  2. BE KIND TO YOURSELF – trust your intuition and listen to your body; if something makes you feel worse then slow down or stop.  If you can’t do what they’re doing in the video (the teachers are often fitter and more flexible than we are) just modify the moves they’re doing until they change to the next move.  Also, some of the dance and Tai Chi moves require more coordination and balance than I currently have, so just do your best, smile, and be proud that you’re having a go; 5 minutes of uncoordinated self-help is better than no minutes – yay you!  

That’s my migraine story – I’d love to hear yours down below in the comments if you’d like to share – it helps me to know I’m not alone (migraine is a very isolating diagnosis), and it helps others who drop in here and read the comments below.

Here’s hoping you’re getting better.

Take care taking care, Linda x 

*

PS. The links to try are embedded in the separate blog posts. If you enjoy a particular approach, then you can tap on the tab at the top of the post to move through similar posts (such as ‘strategies‘, ‘triggers‘, ‘music‘ and so on). 

PPS. Posts that are labelled ‘Linda‘ include personal updates. It’s been a long journey and whist I’m not quite pain-free, I am grateful to be learning how to live a more-pain-less-life through a mindful approach to my migraines. 

(DISCLAIMER: Please be sure to speak to your health care provider before making any lifestyle changes – I am not a medical doctor – I am only writing about what has and hasn’t worked for me as an individual migraine patient.)

If you’re on your own healing journey, or keen to start, feel free to join The Mindful Migraine community as we work together to reclaim our health and transform our lives – subscribe below – otherwise, head off and explore the blog and know that I’m sending lots of love and light your way!

The Mindful Migraine

I suffer from chronic migraine – at The Mindful Migraine blog I share some of the ideas that have helped – I hope they help you too.

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158 responses to “My migraine story”

  1. TTT Avatar
    TTT

    I know it’s not a contest, but gosh, your migraine story makes mine like a walk in the park! Breaking your teeth in pain and losing your identity are extreme. I’m glad you’ve recovered and decided to share your experience.

    Be well always, Linda! I hope your recovery continues and you would be totally rid of that pesky migraine.

    My migraine story is much milder. The frequency increased when I hit 50. As I’ve said in a previous comment, it’s mostly triggered by sleep deficit and dehydration – usually in tandem. So it happens when I’m travelling, which is really not the time to be having migraines as it can upend plans (already paid, argh!) and hijack enjoyment.

    One of the symptoms we share is the pain around the eyes. For years, I thought it was unilateral astigmatism. No eyewear could cure it though. And it struck in less predictable, more random instances as opposed to actual abuse of my eyes, like reading for research or doomscrolling at night.

    I would take a pop of Advil if the pain is severe or if I had to be up and about. It usually gives me instant relief. Otherwise, I just hydrate a lot and sleep it off. I also take it as my body telling me to slow down and chill in bed for a change.

    Will be checking more of your site to learn how to handle this better. Best to prevent it rather than deal with it when it’s already put us out of commission.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      I’m SO happy for you that your migraines are few and far between – well done for being able to manage your triggers too – and yes, learning to listen to the whispers your body is sending you is a big win (otherwise it starts to wail and puts you in the naughty corner for days!) Here if you ever need a chat – stay well (and enjoy the travel (hydrated) when you can!!)) xx

      Liked by 1 person

  2.  Avatar
    Anonymous

    Thank you for sharing your story. It has inspired me as I also have experience migraines and it causes acid reflux. I look forward to reading more from your blog.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My absolute pleasure 💕here’s hoping you find some answers (and some friends) here! Sending support and understanding your way. (I’ll have to do some research on the reflux… I’m just a vomiter!)

      Like

  3.  Avatar
    Anonymous

    Had headaches throughout my life, but not so bad as migraines. I’m glad you are keeping well. 🙂

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you kindly – headaches are a nuisance – hope that they are not too often for you! Take care taking care my friend, Linda xx

      Like

  4.  Avatar
    Anonymous

    You left a comment for me, I’ll leave one in return. I have had severe headache since I was seven years old. The pain was so great it would cause me to vomit. These headaches came randomly and we couldn’t figure out what the cause was. This persisted through high school and into college. The only things that would help ease the pain was to sit still in a dark room for a while and going in the sauna. The sauna helped a lot more than just sitting in a dark room.

    Have you tried a sauna for your pain? And I’m not talking about one of those IR sauna. A real sauna with steam and above 190F? Talk with your doctor to see if you could take some time in one. Even if you go in one for a couple of minutes at a time.

    When I went in the sauna I would build the heat up (throwing a lot of water on the stove to get the steam going) and then I would go into a cold shower for a while or jump in the pool. The change in temperature is what helped me. My heart rate would go up from the sauna, my blood would be pumping through vessels that were relaxed by the heat. If the pain was bad enough I would take some sort of anti-inflammatory before going in the sauna.

    The sauna has lots of other health benefits, there is a lot of information available online about it. And just for a little more info on my familiarity with saunas, my family is from Finland and I have been going to sauna since I was a baby. I’ve had very low stress in my life, never had any acne issues and rarely have I had any sort of muscle cramps. When I would catch a cold, a hot sauna twice in one day would take care of the cold.

    It is good to read that you are managing your pain to the degree you have been. I hope you continue to improve and the pain becomes a rarity for you.

    Cheers!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you for your kind words – I’m fascinated about the sauna idea – I have used float tanks and aromatherapy, but not a sauna – in Australia they are not very common, so it would be a trek to find a commercial one and I’m not sure they would pump the heat up that high (or that I would cope after never having experienced one before) – but I’m going to research this some more – I’m intrigued – thank you!

      Like

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