Welcome to my revelation

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Every now and then something “clicks” in my mind; thoughts align (or collide) and I think “ah ha”. It doesn’t happen very often when it comes to migraine material (I had my first migraine when I was 11 years old), but with all the reading I’ve been doing, I still have some revelation-clunkers.

The most recent one related to the realization that my migraine-pain-brain doesn’t like change (it prefers everything to be predictable and “just right” – which is why I call it Goldilocks) – BUT – the revelation included a new and significant clarification…

My migraine-pain-brain does not differentiate between “GOOD” change and “BAD” change – it just identifies “change” and freaks out.

For example – if I was told that my children had to be at school an hour early all of next week; I’d panic. It’s a small change, but with some big knock-on effects. We’d all have to get up earlier, I might have to drive them to school if the public bus doesn’t co-operate, one of my two daughters would probably turn slightly feral if I suggested she go to bed an hour early to make up for the lost sleep, I would have to skip my dawn walk of the dogs and might not fit in any regular exercise at all, etc etc). Nothing BIG, I know; first world problems and all that. But the reality is the change would have an effect on life as we know it, and it would, I’ll be honest, be BAD (at least until we got used to the new routine).

When life changes, my pain-brain gets stressed. Less sleep is not great. Changed bedtime routines are not great. Missed exercise is not great. Skipped breakfast if we were in a rush is definitely not great… and so on and on…

Take another example – my doctor might relocate his office to somewhere much closer to where I live, and easier to get to. That’s a good change. However, now I have to travel to a new location, adjust my train route, learn how to get from the station to the new building, and so on. It WILL be easier in the long run, but that first visit is going to be stressful for my glitchy, problem-seeking, drama-finding brain.

GOOD change is temporarily BAD.

The trick is to remember that this good change might still be an issue for you on that first day – so plan accordingly. Even if your well-meaning friends and family tell you to stress-less and chill-out, it’s no big deal… perhaps, for YOU, it IS.

Another example is weekends and holidays. Who doesn’t enjoy a break? My brain, I suspect. It gets so used to living life in a rut; predictable, routine, easy to anticipate, habitual… So when you throw a last-minute flight to the relaxing destination of everyone’s dreams… doh! Migraine time.

Perhaps it’s the early start to get there, or the time travelling that throws out my neck, or the dehydration that seems to go with travel… perhaps it’s the new pillow at the hotel, or the unusual weather conditions at the new location, the time difference that creates jet lag, or, or….

Good change, wished-for change, desired change, longed-for change, change that will make life easier, better, funner, weller… is still change.

Migraine-pain-brains don’t like change: good or bad.

So then – no more holidays?

[Maybe in the short term – my family went to Japan without me last year – I was just too sick to even contemplate the super-triggering activities of air travel and hotel hopping.]

But not necessarily forever. What’s important is to remember what our pain-brain likes and try to work around that glitch as much as possible.

If you can accept that we are a lot like human-barometers, then book travel times that best suit your regular routines, or destinations that are not too different to home. Make travel times shorter, or work into the trip enough time to recover if you do get a migraine.

For me – the relocated doctor was not a big drama in the end, but I did accept a lift from my hubby for the first time – just in case.

Sometimes, that’s enough – a bit of forward planning and a just in case attitude. I previously wrote about the idea of how we have to “be (REALLY) prepared” (with a call out to “diabatics” here). The post included the potential of carrying a keyring with your condition and support person’s contact number on it… just in case.

The point is – I’ve always realized I have to be prepared, and that my migraine-pain-brain doesn’t like change… but the revelation that even good change can be perceived as bad is a new idea to me.

So then – have a think about your pain-brain. Is it the same? And if so, what can you do to minimize change-angst? Or are you lucky enough that good-different is all good? (here’s hoping!)

Take care everyone as you take care of yourselves.

Sending love as always, Linda x


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33 responses to “Welcome to my revelation”

  1. SRIKANTH Avatar

    **”Brilliantly insightful Linda ! your revelation about the migraine-brain’s resistance to *all* change, good or bad, is a game-changer. Your honest, practical wisdom offers both validation and strategy for those navigating this invisible storm. A lightbulb moment for many!”** πŸŒͺοΈπŸ’‘

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you kindly – I appreciate you taking the time to visit! Linda πŸ™‚

      Liked by 1 person

  2. pk 🌍 Educación y mÑs. Avatar

    Interesante publicaciΓ³n πŸ’―

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      πŸ¦‹thank youπŸ¦‹

      Liked by 2 people

  3. LaDonna Remy Avatar

    Linda, I think these are excellent insights and good wisdom. Change as a trigger makes sense. I am very sorry this has been a part of your experience.

    You seem to navigate it with both grace and wisdom. Thank you for sharing these insights.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh thank you so much for your kind words – they mean a lot to me! Thank you for being here, L xx

      Liked by 2 people

      1. LaDonna Remy Avatar

        ❀️❀️

        Like

  4. Azza El Wakeel Avatar

    I once had a friend who suffered from migraine so I understand how you feel and how difficult it is to live with it. Did you try Chinese therapies or remedies?.

    Try to avoid stress, live at your own pace, and keep writing and sharing your thoughts.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Thank you kindly, and yes, I’ve tried a few Chinese therapies, some work, some not at all. Stress is my biggest trigger, so doing my best to avoid that! much love for your support – it means a lot to all of us migraine people! Linda xx

      Liked by 2 people

  5.  Avatar
    Anonymous

    Interesting readβ€”poetic with little humor in a way that really resonates. No migraines here, but I’m with you on not loving change. Some change is good, sure, but most of it? Not my favorite. I like things stable so I know what to expect. Don’t go moving my cheese!

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh! I have a fight with my husband “don’t go moving the dog-poo bags!” I can’t tell you how many times I’ve gone to walk the dogs and can’t find the bags – ugh!

      Liked by 1 person

  6. Info-Man Avatar

    This is interesting, changes are nice but adapting them is hands πŸ˜‚πŸ˜‚ , i had to wake early today and that change was so hard, idk how will I survive that change πŸ˜‚πŸ˜‚.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      One day at a time!!

      Liked by 2 people

  7. Rin Lamy Avatar

    so… I’m not a doctor lol. But, have you pursued the idea that your migrains, or at least some, could be psychosomatic? It is pretty evident they are caused by stress, but you’re stressing about stressing and getting a migraine. I don’t get migrains luckily, but my digestive system gets pretty angry about stress. I wonder if emdr might help both of us.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Mine have complicated sources – lots to do with perimenopausal hormone changes, plus some postural issues (which I’m working on) and the stress, and (as you rightly point out) the stress about stress! I looked into EMDR and it would only help with some of my root causes, so too CBT. Because it’s so multifaceted, it’s taking a lot of different approaches to heal it; physical, mental, emotional, and so on. Reminding my nervous-system that it IS safe, and then trying to re-regulate it so that it spends more time in rest-and-digest rather than fight-or-flight has been a long journey – but I’m getting there! Now I just have to sort out the wild weather swings, which are also a trigger!! (If you haven’t already, I’d look into your Vagas Nerve if you can – it might help with the tummy troubles (it’s helped mine)). Linda xox

      Liked by 1 person

  8. Michelle Avatar

    Thanks for this post and the insight. Very interesting

    πŸ‘Œ

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh, no problems! Thanks for visiting – you are so welcome here, anytime! Linda xox

      Liked by 2 people

  9. johnlmalone Avatar

    yes I HAVE to get a new car — the old one’s had it —- and the process is causing me stress but now I’m doing something about it — and brought other people into the equation, the change is manageable — and a tad exciting πŸ™‚

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Hooray for shifting the narrative from stress to excitement – super happy you’ll probably be safer and sounder in your new wheels! Enjoy! xx

      Liked by 1 person

  10. Wynne Leon Avatar

    Your note that it doesn’t matter whether it’s good change or bad change reminds me of something I heard from neuroscientist Maya Shankar. She said that all change comes with loss of identity. It’s easy to see with big changes like divorce or work but also with small ones. What happens to the woman who always gets up at 5:30 when she gets up at 7 for a week? It’s minor but it’s still a dissonance with identity. Sorry for the riff but your revelation struck a chord!

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      Oh! Never apologize for having an idea – all insights are valuable. I think “dissonance with identity” is a fabulous turn of phrase – and I think you’re right – I was focused on the sense of “risk” attached to change (because of the unknown), but even my text suggests it is the deviation from the norm that was an issue, the shift from the regular version of me that was familiar (and therefore safe – even if sick). I think it’s exactly why “minor” can still feel “major” if our sense of self is feeling fragile for whatever reason. Nice to know someone else “gets it”, I suspect others sometimes think I’m being alarmist! Linda xx

      Liked by 1 person

  11. Kari Avatar

    Oh man, this is me, I fear. I was actually talking about something similar with my daughter last week. When I have plans β€” even if they’re a change to my schedule that I look forward to and genuinely enjoy β€” I still, deep down, kind of dread them.

    Even though I have my appointment at my migraine clinic β€” and that appointment will help me get my injections and additional medication β€” I still deep down dread it. I don’t suppose that helps with migraines.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      It was a bit of a gut punch to me because I’m a curious person who normally enjoys new things… it’s just that at the moment my nervous system is still too dysregulated to look forward to the event on every level. The whispered voice of dread you’re hearing is so real – AND – I think it’s actually pretty cool that you can hear it! I’ve been struggling with these amped-up migraines for 3 years and only just heard the whisper – so yay you!

      Liked by 2 people

      1. Kari Avatar

        I’m so sorry you’ve had more intense migraines. I’m glad you’re doing the work to figure out what’s behind it β€” sometimes it feels like it’ll be a lifetime project, and maybe it will be. One day at a time. πŸ˜˜πŸ’œ

        Liked by 2 people

        1. The Mindful Migraine Blog Avatar

          You know what – I used to feel sad that this might really be a long-term-lifer project… but then I thought, what better project to spend a lifetime on than yourself, your joy, your health! I’m ok with it now! xx

          Liked by 2 people

          1. Kari Avatar

            Yes! Me too. πŸ’œ

            Liked by 2 people

            1. The Mindful Migraine Blog Avatar

              Hooray 🌸🌸

              Liked by 2 people

  12. The Oceanside Animals Avatar

    Charlee: “We cats don’t like change either.”
    Chaplin: “Nope.”
    Charlee: “New things are weird and scary.”
    Chaplin: “Yep.”
    Oona: “New things! Yes! Oona loves to investigate new things! She runs right up one side of them and down the other!”
    Charlee: “Speaking of weird and scary …”
    Chaplin: “Yep.”

    Liked by 4 people

    1. The Mindful Migraine Blog Avatar

      πŸ™ƒthe reality is, we’re all wired differently – my curious mind enjoys “weird” but my body assesses it as “scary” – sigh – so investigations yes, running up and down the unknown, no! xx

      Liked by 1 person

  13. Jennifer Patino Avatar

    I’m the same. Any change requires a new way of doing things & sometimes added stress for me which of course, doesn’t help pain. I’m constantly having to learn how to re-navigate so to speak.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      I think it’s part of why we are so tired so much of the time – we’re always shuffling, shuffling…! Recognizing it helps though; I’ll be more attentive to the choices I make and ensure I keep some space for recovery around them! Sending love and support, Linda xx

      Liked by 2 people

  14. Mary K. Doyle Avatar

    I think you’re right, whether it be lifestyle or weather changes, they are difficult for us to navigate initially.

    Liked by 3 people

    1. The Mindful Migraine Blog Avatar

      “Initially” is the important bit – you’re right – we come good eventually, we just need a little more space and time than most – AND we need to make sure we secure some of that space and time to make the transition as smooth as possible! L xx

      Liked by 2 people

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