Category: Community
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Inchstones and blogrolls
In one of those humbling lessons the universe so often sends me, no sooner had I posted a negative review of the internet, than the internet gifted me with positivity. Moreover, since I only just blogged about ‘inchstones‘ and celebrating all our baby steps, I decided I should share that…
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Twitter-X for chronic pain
I’ve only been on Twitter-X for a few weeks, and it’s been a rollercoaster. On the upside, whilst there’s not a lot of coordinated community activity around #migraines (that I can find), many people have been very generous with their time and answered my questions (about things such as injectable…
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The future of migraine research
In another instalment from the Migraine World Summit, (which is still accessible if you want to watch), Dr Walter Koroshetz, director of neurology disorders (NINDS) in the United Sates, was asked about the future of migraine research. The interview stretched my pain-brain a tad, and there was a lot of…
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The global migraine
Each day, after I upload a post onto the blog, I can go ‘behind the veil’ as it were. I can see how many people have been reading the individual posts, and the blog in general. I don’t always check, because I often find myself becoming a little compulsive about…
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Buddhism, nasal sprays and AI blog crawlers
This morning was a strange morning, made up of two negatives and a positive. I set off early to get ahead of the rush at the local Medical Centre, intent on getting a script for a nasal spray version of my migraine abortive. After waiting forty minutes to see the…
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Migraine terminology (words matter… mostly)
The other day on Twitter-X, I saw a post that essentially read “I’m 50 years old and I’ll go to my grave using two spaces after a full-stop.” The replies varied from “preach brother” and “I’ll die on that hill with you”, through to “do what you want – editors…
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Migraines – as advertised
My intention was to write a completely different post today, something about why words matter and how the terminology around migraine care is changing. I’ll get there. Instead, I opened up my web browser and saw an ad from an overseas online store that sells everything you could imagine for…
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World Migraine Summit
Ok, so I totally tempted fate yesterday by saying that I was ‘over’ my migraine attack. A few hours later, I was back in bed, completely wiped out, no dinner for me. At the risk of showing my age, I feel like one of those antique ‘roly-poly dolls’ or the…
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Goldilocks, routines and migraines
When I first started this blog as a New Year’s resolution to myself, I was mostly posting to keep track of all the links that had worked for me, and in the hope that they might one day help a couple of other people. I uploaded about 10 posts on…
The Mindful Migraine 