Migraine Awareness Month (& blog news)

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Hello! If today is your first day visiting The Mindful Migraine Blog; welcome! If you’re a regular popper-inner, welcome back my lovely friend!

June is Migraine Awareness Month.

In the past, I haven’t made too much of a fuss about it, because I’ve been struggling too much with my health to promote much more than ‘breathe better and be kind to your mother’ as a rallying call.

The start of June is also the anniversary of my chronic migraine journey – so today means that I have had 4 YEARS of daily migraine pain.

Luckily, these days, my pain mostly resides at a level 1 on the Pain Scale (in my right eye (I call it my ‘migraine-eye’)). Better yet, I am having more and more days that are very close to a 0, which is an exciting (deliberately not too bright) light at the end of a long, dark tunnel.

I do, however, still occasionally have a full-on migraine-attack. Just last week, I visited my neurologist for my 31 Botox injections (and no, it’s nothing like plastic surgery Botox (read more here)). Maybe it was a coincidence, maybe not, but I spent the next 3 days after the visit in and out of bed with a migraine-shocker (no projectile vomiting, but plenty of the woozy-woobles and a thick blanket of brain fog that lingered long after the head-in-a-vice pain passed).

UGH.

Migraine sux.

It’s why I started this blog a couple of years ago – there was plenty of information online ABOUT people with migraines, but no warts-and-all accounts of migraine life BY people with migraines.

Enter me… and YOU.

I say it a lot, but really; thank you for being here and helping me through the grim years with your radiant kindness – you all mean the world to me!

OK – to expand the lovefest and circle back to Migraine Month, I have a couple of things to announce.

The first is to let you know I’m in a podcast interview where I discuss one of my favorite topics, metaphors for healing, with the fabulous Dr Michelle Greenwell (who just last week left a metaphoric comment on my post about how ‘time flies’ converting it into ‘time flows’: “Perhaps time has to do with expectations and goals. When we know where we are going everything flows, while not having our GPS set seems to have us weaving in and out of needless activities and ideas that moves us away from the things that matter most” – so good!).

Here’s the link – enjoy!: Migraine Awareness Month: Finding New Pathways to Healing – Greenwell Center for Holistic Health

The second is that I want to do a shoutout for some of the official Migraine Awareness Month initiatives so that you can get involved and show your support, or perhaps seek contact with others who are going through this sh!t-show with you. This list is NOT exhaustive, but it’s a good place to start:

1 June onwards: Move for Migraine (a Canadian initiative where everyone’s steps are added together to create a 20 million-step journey around Canada)

5 June – Australia’s “Burple Day” (wear burgundy-and/or-purple and upload a selfie with the hashtag BurpleDay to show you’re aware)

13-28 June Flags for Headaches (where thousands of flags are placed in Washington DC, and each flag indicatively represents a thousand people living with head pain in the USA)

21 June Shades for Migraines (wear sunglasses on the longest (sunniest (most annoying day for migraine people in the Northern Hemisphere)) as a sign of support)

Throughout June (and beyond) Miles for Migraine (run or walk in local community events across the USA to put your feet where your heart is)

If you know of any others, drop them in the comment section below!

Lastly, in some bitter-sweet news, I have realized that a large part of my healing has come from reprioritizing how I spend my time, with a preference for doing a little less of everything. That includes spending less time on my computer, and more time outside. Whilst I LOVE being on this blog and talking to all of you in the comments, and then reading your own fascinating blog posts, publishing 3 articles a week takes a lot of time and energy that I don’t always have.

So, I’m going to go from posting Mon-Wed-Fri to just twice a week; Monday and Friday – at the same time as before (roughly 8am Sydney-time).

It was a hard decision, but I look forward to this new chapter in my online-offline-life.

All the best for the month of June and see you again in 4 days’ time (instead of 2!)

Take care taking care,

Linda xox

PS – in case I don’t get around to it this year, here’s some past posts for Migraine Month: Meet the Burples and Shades for Migraines


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57 responses to “Migraine Awareness Month (& blog news)”

  1. Mary K. Doyle Avatar

    I’m sad that your days are painful, Linda. I send you love and a gentle hug, my friend.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      The pain is getting further and further apart which is a good thing – there are so many others that are doing it tougher than me – I just wish I could magic it all away for all of us… and then fly overseas to have a tea with all of you! ๐Ÿ˜‚๐Ÿฅณ

      Liked by 1 person

  2. Edward Ortiz Avatar

    Your blog is unique and very helpful. You are making the same decisions I made about blogging. Posting meaningful writing three times a week is exhausting. Twice a week was definitely much better, and I stayed on that plan for a while, but now I’ve decided that once a week is the right fit for me. It gives me more time to interact with other bloggers, attack the long list of things I need to do around the house, and take care of myself.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Interesting! You write long, powerful posts, I’m a bit simpler (but there’s still a fair bit of behind the scenes reading to do)… at the end of the year, I suspect I’ll switch to weekly too. There’s no shame in quality over quantity… I just hope that the WP algorithm doesn’t punish me for my self-care-decision!๐Ÿ’œ

      Liked by 1 person

      1. Edward Ortiz Avatar

        Great point about the algorithm. My number of views and visitors is about the same. There was a small reduction when I switched, but itโ€™s now back to similar levels. I have to wait until the end of the year to compare it to last year, my best so far, but Iโ€™m okay with what Iโ€™m seeing.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          For me it’s always going to be about having a say and representing people who feel unseen, and the algorithm is secondary (but it IS a nice affirmation that the overall approach is working!) (One day I’ll have to learn about SEO and heading-use, improving titles etc etc… just not today… it feels so dry!)

          Liked by 1 person

          1. Edward Ortiz Avatar

            Yes, thatโ€™s a great purpose, my friend. SEO is a whole other story. Iโ€™ll learn it one of these days.

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              When you do, can you please make a blog post for me with a cheat sheet! ๐Ÿ˜‚

              Liked by 1 person

              1. Edward Ortiz Avatar

                Of course. ๐Ÿคฃ

                Liked by 1 person

  3. Mindful Mystic (MM) Avatar

    Linda, you have accomplished so much and created a space for advice, wisdom, and strategies that help so many people. I applaud you and wish you all the best in every endeavor. Posting twice weekly is a reasonable self-care decision. BTW, WP unsubscribed me from your blog and when I tried to subscribe again (five times) it didnโ€™t work. Iโ€™ll try again soon.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you so much๐Ÿ’œit means a lot to have your kind support xx

      (I donโ€™t know what is happening with WP at the momentโ€ฆ sighโ€ฆ itโ€™s feels harder than it used toโ€ฆ itโ€™s part of my reason to take a small step backwardsโ€ฆ sighโ€ฆ )

      Liked by 1 person

      1. Mindful Mystic (MM) Avatar

        I understand. โค๏ธ I wonder what theyโ€™re changing on the platform?

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          It makes me a bit nervous to be honest – I’m not very computer savvy, so every time the format changes, or behind-the-scenes things are altered, I have no way of understanding what to do to fix it. I lost a dozen followers overnight recently (I thought it was something I said), but then they seemed to come back… I just keep keeping on and hope for the best! xx

          Liked by 1 person

          1. Mindful Mystic (MM) Avatar

            I donโ€™t like all the changes either. Makes it more difficult to just blog. The subscribe/unsubscribe thing is still messed up. Wishing you a peaceful and relaxing weekend. xx

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              Thanks lovely – know that regardless of what’s happening in the background, people like me are still reading, and still caring about you and what you say, L xx

              Liked by 1 person

  4. The Oceanside Animals Avatar

    Lulu: “It’s good to have a month for awareness of things brain-related! Our Dada usually busts something out in September for the aneurysms! Um, wait, let me rephrase that, I don’t want to use ‘bust’ and ‘aneurysm’ in the same sentence …”
    Chaplin: “Too late.”
    Java Bean: “We’re glad to hear that your pain has been mostly more manageable lately and send lots of tail wags for it to continue!”
    Charlee: “And we cats send lots of purrs!”

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      All purrs and tail wags gleefully accepted!

      Like

  5. Gail Perry Avatar

    It’s good to see you examining your priorities like this. With the PhD done, you can actually start having fun when you feel like it, in all senses of that word, feel. After all, it’s your blog, and there is an offline life out there for you. I’m so happy that you’re having days that are nearly pain-free. After years of chronic pain in my right shoulder, there were pain-free days within a week after my surgery. I’m 8 weeks out now, happily having many days between 0 and 1. I have resumed most of my usual activities, along with a home physiotherapy programme to help me get my range of motion back. I can’t lift anything right now, but I have been told that strength training starts at 12 weeks.
    As you know, I have other chronic pain, although the shoulder was the worst. Without it, I have become more aware of the rest!
    Go, Linda, and find your offline happy place.โค๏ธ

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh thank you for this kindness! You’re right; there is a new freedom that comes from not having to show up for those 20 hours a week no matter what. I understand too about how a reprieve from one pain leaves room for the others to speak louder, but when it is the ‘worst’ pain that goes quiet, it is such a relief! I am SO glad to hear that the shoulder is progressing well, hold off on that day-to-day weightlifting a little while longer if that’s the advice – recover first, then get stronger. It motivates me to hear your story, because there really can be life after pain, excited to hear your next chapter! xox

      Liked by 1 person

  6. greenwellcenter Avatar
    greenwellcenter

    Thanks for the sharing of the podcast episode. We covered a lot of information and the power of metaphors is critical to understanding how pain may come and can go. We have several tips and tools in the episode, and be sure to make a cup of tea to sit back and enjoy the discussion! Thanks Linda for the joy of shining a light on bioenergetic wellness.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My absolute pleasure – I am so grateful to have met you and spent time with you – I know how busy you are helping so many people on their healing journeys, but I’m always open for another chat when the time is right! Thank you for all that you do! Linda xox

      Like

  7. daylerogers Avatar

    I’m grateful your pain has reduced so much, but you do need to take care of yourself. That’s called healthy boundaries, dear friend! I know I mostly suck at boundaries, but you’ve made so much progress with your pain management, I’d hate to see you slip backwards. And I had no idea that this began Migraine Awareness Month. It’s also the beginning, here in the States, of hurricane season. They seem to have the same effect on people. Please take care of yourself.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh! There’s seems something wonderfully potent about MAM starting alongside my anniversary AND hurricane season (and it’s my birthday month – a big 55 coming up)! Thank you for the reminder that it’s ok to create boundaries – I’m not great at it either, but I keep practicing, and this one feels right at the right time! If I’m slow to visit your blog, now you know why – I’m off chasing hurricanes! xx

      Liked by 1 person

      1. daylerogers Avatar

        No obligation, my friend. Stay healthy.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          ๐Ÿ˜˜๐Ÿ’•

          Like

  8. Dana at Regular Girl Devos Avatar

    Linda, I applaud you for doing what you need to do for you! I also wanted to thank you for all the work you put into your posts, the information is so helpful. I got one of the books by David Walton that you recommended and it has really helped me being a new path to being my own pain manager. Rest, dear heart and know you are encouraging others through your caring and sharing!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      How wonderful! I’m so glad I could give you some clues about where to head next – good luck on your journey my friend – you have the courage and the determination; may it take you towards greater health and happiness! And thank you for being a warm hug for all those who know you! xox

      Liked by 1 person

      1. Dana at Regular Girl Devos Avatar

        Thanks so much for your kind words, Linda! Take care!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          ๐Ÿ˜˜๐Ÿ’•

          Liked by 1 person

  9. richardbist Avatar

    Nice to see the activities being utilized to promote awareness, Linda.

    And I’m glad you’re prioritizing your health (mental and physical) over blogging. I know what you mean about three times a week (I’m amazed by those that post daily). Enjoy the extra time in the sunshine, my friend! ๐ŸŒป

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Will do – apologies in advance if I’m slower than slow getting back to your blog – know that my intentions are good even if my willpower is lapsing! x

      Liked by 1 person

      1. richardbist Avatar

        No worries, Linda. I’ll see you when I see you. ๐Ÿ™‚

        Liked by 1 person

  10. Ephemeral Encounters Avatar

    Linda I take my hat off to you I really do.
    I just had a two day migraine ๐Ÿ˜ช that was enough.
    You are incredibly strong and you deliver so much in your posts
    Thank you .
    Big hugs ๐Ÿซ‚๐Ÿ’™๐Ÿซ‚

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you lovely! I’m sorry that you were struck down by another shocker – it really is a mean illness that can really pull the rug out from under us! I’m grateful that the bad days are spreading out, but mainly I’m glad to have met all you wonderful people! xx

      Liked by 1 person

      1. Ephemeral Encounters Avatar

        Take good care Linda xo

        Liked by 1 person

  11. ibarynt Avatar

    Twice is not a bad thing Linda. If this means helping you get better and be out there more, sprint for it ๐Ÿ˜Š.
    I’m glad to hear the migraines have reduced. I hope they continue in that track.
    I remember my aunt who had severe migraines, most times she had to sleep, there wasn’t much she could do.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Crashing out in a dark, silent, room is often the only thing you can do, and wait it out. The meds are getting a lot better now, so with luck people like your aunt will spend less and less time in solitary confinement… but it’s still a necessity on those bad days because we become so sensitive to noise and light. xx

      Liked by 1 person

  12. safia begum Avatar

    A warm and friendly blog welcomeโ€”greeting both new visitors and returning readers while creating an inviting, supportive atmosphere. ๐ŸŒฟโœจ๐Ÿ˜Š

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      thank you so much for your kind words – I am so happy to host so many wonderful reader-visitors! ๐Ÿ™‚

      Liked by 1 person

  13. amberhorrox Avatar
    amberhorrox

    Great news about just how much your daily pain has improved!I always referenced โ€œmigraine brainโ€ so can understand the eye dilemma.Urgh to the wild attack after the 31 injections. Yikes! I was the most Iโ€™ll Iโ€™d been in a couple of years the other week. Then Iโ€™ll twice the amount the month before. Likely linked to the pressure Iโ€™m feeling to get the book done. Still havenโ€™t got to that chapter I said Iโ€™d send you.Though feedback from beta readers on pathway one has been nothing short of outstanding.Every intention I set for this book coming to life. Which is no mean fete given how many I put in there๐Ÿค— Canโ€™t wait to listen to your podcast, I loved mine with Michelle๐Ÿคฉ

    Sent from Yahoo Mail for iPhone

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Iโ€™m so excited for you – regardless of where the book takes you next, it is already having a ripple effect which is wonderful! ๐ŸŒŸ๐Ÿคฉ๐Ÿ’œ

      Like

  14. Chris Avatar

    Thank you for this post. I don’t have migraines but I have relatives who occasionally do. Four years of migraine would be no fun at all. I’m glad you are communicating your experiences with others so that they might be helped as well.
    God’s blessings…

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you Chris – it is always a pleasure to have you here my friend! ๐Ÿ™‚

      Liked by 1 person

      1. Chris Avatar

        You’re welcome, Linda, and thank you for always making me feel so welcome here. ๐Ÿ˜Š

        Liked by 1 person

  15. Rosie Meadow Avatar

    Glad you are taking care of you!
    ~ Rosie

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you Rosie – may you have a wonderful week! xx

      Liked by 1 person

  16. thomasstigwikman Avatar

    “4 YEARS of daily migraine pain” that is a lot. You gave a lot of interesting suggestions for Migraine month. I am going to try to do something. Going from posting 3 times per week to 2 times a week sounds like a good idea. It depends on the size of your posts but I typically can’t do more than that myself, and with migraine you have to be careful.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My posts are pretty short and sweet, but even so, they take a fair bit of effort to prepare, because I don’t want to waste people’s time with something that hasn’t been edited properly. Even if you don’t get fully involved in Migraine Month, it’s great to have it on your radar – you might be surprised how many people you know have migraines! Regardless, thank you for being kind enough to care! x

      Liked by 1 person

      1. thomasstigwikman Avatar

        My mother had migraines. Not every day, but she had episodes that were terrible. You are right there might be others that I don’t know about. Wearing sunglasses on June 21st is an easy one I can remember. I have it on my schedule. I will look to see if there are any miles for Migraine where I live.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          You know what, whether you join in or not, you’ve shown that you care about others and this is exactly what these awareness campaigns are all about – chronic illness can make people feel very marginal, peripheral, invisible… knowing that people like you see us means the world – yay you! ๐Ÿ™‚

          Liked by 1 person

          1. thomasstigwikman Avatar

            You are so very kind Mindful Migraine. Thank you so much for your very kind words. And I am deeply impressed by you finishing a PhD, which I know is a ton of stress and hard work, despite having migraine.

            Liked by 1 person

            1. The Mindful Migraine Blog Avatar

              ahhhh thank you!

              Liked by 1 person

  17. John Avatar

    Enjoy your time away from your site, Linda, there’s a huge world out there to be in!!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Yeah! I can’t wait to be under more of those blue skies you photograph!๐Ÿ’™

      Liked by 1 person

      1. John Avatar

        Enjoy!!

        Liked by 1 person

  18. joannerambling Avatar

    This is a cool post

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      thank you lovely – I’m going to miss connecting with people like you when I’m more offline, but I think it’s time to get a bit more fresh air – look after yourself my dear! xx

      Like

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