When your healing journey hits a roadblock

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Well.

Today, I came across an article which reminded me I could make another tweak in my metaphors for healing:

Illness narratives are broken – and they’re failing women like me | Emma Hardy | The Guardian

Ms Hardy (author of Periodic Bitch) writes that she was diagnosed with a chronic illness called premenstrual dysphoric disorder, or PMDD. There’s no ‘cure’, only ways to improve the quality of her life with the disorder. She notes that the predominate narrative trope in the West is the “hero’s journey”, an adventure which shifts the traveler’s outlook (and potentially their whole life) after several trials and tribulations (my words not hers); “they take on their biggest challenge and overcome it. They return a hero.”

As Ms Hardy notes, “Many of our stories about illness follow a similar narrative arc. […] someone gets sick. The person does not want to be sick. The illness is eventually accepted, bravely fought, and our hero either gets better, or they don’t, and they die. This is a narrative structure that relies on closure. It values transformation over endurance. But it has nothing in common with how chronic illness actually plays out.

She notes that she IS feeling better than she used to when she was first diagnosed, but where she finds herself is not a conclusion: “The neat moral lessons of the hero’s journey do not help me when my body will not re-enact that story. A neat ending does not help me live my messy middle.”

Hardy referenced a book which gave her an ah-ha moment. It was a book which I had read before, and rushed to re-find; “Meander, Spiral, Explode” (2019) by Jane Alison. The book offers multiple alternatives to the neat character arc of a hero’s trajectory which might better reflect the complexity of lived experience and make for a more interesting story, or a more realistic healing journey:

+ Meander: a flowing, winding, exploratory form that mirrors the twists and turns of nature, such as a curving river or a snake in motion.

+ Spiral: a narrative journey which turns back on itself, in a coiling, self-reflective manner.

+ Explode: when stories suddenly break apart with an unexpected, intensity.

But there were also other forms she mentions; waves, branching, cellular, radial and fractal patterns that can emerge…

Returning to Ms Hardy, she found that the spiral-metaphor resonated most with her situation: “It’s a pattern fit for recurring illnesses, or looping obsessions, or stories told over years as the Earth spirals around the sun.”

For me, my healing journey meanders.

I immersed myself in getting better as if it were my full-time job. No, not job, a mission. No, not a mission either; an experiment. My healing experiments threw a wide net over mind-body-soul-creative activities. I investigated options this-way-that, I named my pain, I stopped to smell the roses and drink a cup of tea. I made a healing wand, turned to Tarot cards, journalled, took up Tai Chi Walking then Belly Dancing

Now, when I look back on my journey, I laugh at all the places I have visited, all the postcards I could have sent home.

No wonder I’m tired!

But I’m OK with that.

Pivot, turn, bend, sway, meander…

…onwards and upwards…

or not.

Chronic pain is like that.

The journey continues.

We’re all heroes, regardless of the genre.

And now that I have this new awareness, the next time I hit a roadblock, I’ll throw myself a Block Party!

Take care taking care out there,

Linda x

Ps – How do YOU metaphorize your healing journey?


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43 responses to “When your healing journey hits a roadblock”

  1. Carol A. Hand Avatar

    Such a fascianting and liberating post, Linda. Simply surviving recurring pain and finding ways to be patient and grateful for the chance to breathe love into what we are able to still do is a blessing and a heroic journey. Yesterday, I could clean a garden for late planting and observe a baby bumble bee who was looking for a place to build her home in the newly tilled soil along the edges. Today, I’m resting to let my body heal, giving the little bee time to build a home before plants go into the ground to provide safety and shade. Perhaps her work polinating will be a much greater gift to the future than those who spend billions of dollars on war… 🪶💜

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      The bumblebee is natures wonder work 🐝 rest easy and then check in on her progress xx and yes; peace please! 🙏

      Liked by 1 person

      1. Carol A. Hand Avatar

        🪶💜

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🥰

          Like

  2. Edward Ortiz Avatar

    My goodness, what a tough question. I think of it as comparing my previous experiences with my current self. Back when I was younger and a runner, I always competed against myself. I didn’t care how fast others were, I was only focused on improving my own time. My healing journey works the exact same way. For example, I remember how I used to dwell on negative thoughts in the past (for an average of two weeks, which is pretty sad!). Now, I’m usually good after 24 hours. Sometimes, I can even push those thoughts out of my mind almost immediately after they enter. I’m still a work in progress, but that’s okay.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Wow! You’re so self-aware – that’s great! Negativity is natural, but holding onto it becomes a kind of poison that festers unhelpfully… (spoken from experience; I used to be a bit of a world-record holder for grudges – now – hmph! I’m no angel, but why give them more attention than they deserve).

      And absolutely, yes, we are all a work in progress – I think it would be a shame if we thought “I’m done” and stayed put in ourselves fixed in place for ever after!

      Liked by 1 person

      1. Edward Ortiz Avatar

        I agree with you about grudges. It’s definitely not worth giving them more attention or things to talk about. Absolutely, we are never done. The Stoics said that we can never achieve the sage stage, and I think they were right. The goal is to pursue it and enjoy the progress we are making.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          I like that – it’s a nice riff on “it’s all about the journey not the destination” idea!

          Liked by 1 person

          1. Edward Ortiz Avatar

            Absolutely!

            Liked by 1 person

  3. Dana at Regular Girl Devos Avatar

    Thank you for reminding us that we all need to find our own path to wellness. Sometimes the “cure” the doctors offer is worse than the symptoms. Every body is different and it takes time and effort to learn what our own bodies (and minds) need to the best we can be.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      👏🌞💕

      Liked by 1 person

  4. The Oceanside Animals Avatar

    Java Bean: “Ayyy, well, I was recently on a healing journey because I was jumping around at the fence like an idiot, according to Mama—”
    Charlee: “And the rest of us.”
    Java Bean: “—and scraped up my paw pads, and bought myself the cone for a week! I could tell healing journey was over when the cone came off, to my immense relief, because I had a lot of personal hygiene to get caught up on …”
    Lulu: “Not to mention missed playtime. Come on, Bean, let’s wrestle some more!”
    Java Bean: “Aférrate, I’m not finished with the personal hygiene yet!”

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      ahhhh the cone… I’m sure you wore it well – hope you didn’t get too many splinters on that fence!

      Like

  5. safia begum Avatar

    A thoughtful and introspective reflection on healing, showing how personal growth often requires new perspectives and evolving ways of understanding our journey. 🌱✨

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      thank you! 🙂

      Liked by 1 person

  6. Stella Reddy Avatar

    For me, the harm I experienced stripped away my illusions, not my essence.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      ooooohhhh…. that is such a lovely way of reflecting on the years of drama you experienced – I’m so sad that you had to go through it all, but you are such an inspiration for how you continue to stand tall – I’m so proud of you! xox

      Liked by 1 person

      1. Stella Reddy Avatar

        Thanks Linda! xoxo Your inspire me to try new things.

        I hope all is well in your World and you are meandering along!

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          Always a pleasure! (I’m still having quirky pushbacks on your site that tell me I’m not logged in so can’t comment – but know that I visit! xx)

          Liked by 1 person

        2. The Mindful Migraine Blog Avatar

          PS – so glad you love your new apartment! xx

          Liked by 1 person

  7. Gail Perry Avatar

    Thank you for this, Linda. As always, your posts give me new ways to look at and deal with my chronic pain. Right now, I’m trying to make sense of the radical change that resulted from my shoulder replacement. The hero’s journey is the perfect metaphor. I went from intense pain to no pain in a week! Of course, there still is the rest of my body, which deals with chronic pain and chronic fatigue every day. Sometimes, it comes in tsunami-like waves, overwhelming me. Other times, it rolls calmly, like a gentle stream. Sometimes, I fall asleep with a cup of tea in my hand. Thankfully, there’s prayer!

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      thank YOU for being here – you perfectly remind us that you can address one pain and still live have to manage another – it’s a real balancing act (like cradling a cup of tea while falling asleep!)

      When the hero’s arc works, it is accompanied by such a sense of victory (I felt the same way when I graduated my PhD: “mission accomplished”!) but for many other aspects of life, we just have to go with the flow and accept there might not be fanfare when (and if indeed) we get “there”.

      (So glad the shoulder is better – keep resting my dear!) xx

      Liked by 1 person

  8. daylerogers Avatar

    It’s interesting–I don’t think healing ever follows a straight path, but neither does life. We do so many things to make it work the way we want it to, to protect what we think we have. At some point, we’re all meandering, especially with so much noise in the world telling us what’s right and what isn’t. I get the idea of being the hero in our stories, fighting to save ourselves from pain. But I think God is the true hero, the One fighting for us, even in the midst of pain and exhaustion. I think I see more Spiral and Explode now more than ever–pain is real, and sometimes these feel like the only alternatives. But God. I’m grateful you always write with a sense of hope, my friend. Thanks for being you.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Thank you lovely! I often think of Pandora, opening the box and all the bad stuff flying out, but she snaped the lid shut before hope flew away – hope is mighty powerful, for me, for you, for all of us. xx (Here’s hoping there’s more spiralling than exploding in our personal character arcs…!)

      Liked by 1 person

      1. daylerogers Avatar

        I wholeheartedly agree. Hope is a necessary nutrient for life.

        Liked by 1 person

        1. The Mindful Migraine Blog Avatar

          🌞

          Liked by 1 person

  9. richardbist Avatar

    That’s a really interesting take on illness and healing, Linda. It’s true…I know I always think of illness (and injury) as something I deal with then get better. But that’s not always the case. I have a knee injury that I had surgery to fix, and while it made it better, it’s not truly “fixed”. There’s still aches and pains to remind me.

    Coincidently, I recently read of some research done in Europe that found patients who opted to not have the surgery ended up having better results than those that did.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      How interesting! I was very close to signing up to get my dodgy hip operated on, but decided to concentrate on my posture, practice tai chi, and understand and manage my pain better… 3 years have gone by, no operation. I suspect it might still be needed, but I’m happy to push that can down the road a little longer if possible! Sending some light and laughter to your knee! 🙂

      Liked by 1 person

  10. greenwellcenter Avatar
    greenwellcenter

    This is a great topic. So often the journey is all defined by the illness and it can only be viewed through that lens. To be able to shift to a lens of what we want on the other side of chronic illness, without its defining parameters, we can live freely from the restrictions that envelope us or hug us tight. What is life as a person, not a person with a dis-ease?

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      So good! I agree! I keep reminding myself about the distinction of (dis)ease – it’s a small but potent word break! xx

      Like

  11. Girish Mani Avatar

    With this post, I got a something to explore which may be helpful for me. Thank you 😀🙏

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      My absolute pleasure! I’m so happy that it might be of help – and thank you for the comment – it’s feedback like this that keeps me posting! xx

      Liked by 1 person

  12. Charli Dee Avatar

    Really interesting post Linda! Your posts are always thought provoking! Depression is a chronic condition I have been dealing with for a long time. I would compare my depressive episodes to natural disasters. They were often unexpected and uncontrollable. It was awful. I’m happy to say I haven’t had a depressive episode in a while. I’ve had sad moments that feel more like normal weather instead of storms or natural disasters. I still get rainy days, but I’ve learned how to predict them and prepare. 

    I like that you brought up not everyone’s healing journey looks “perfect” or the same. Some people don’t have that “perfect” happy ending to their healing journey. I’m still learning how to accept that rainy days are normal and how to accept mine. I’m still a work in progress. Also, my insecurities are a big part of my depression, and I’m still dealing with them. I’m still struggling to accept myself. That is also part of my journey. 

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Oh wow – you are NOT alone in this whole ‘work in progress’ thing – I don’t really think that there are many real life examples where someone is ‘cured’ and lives happily ever after – there will always be highs and lows, life’s a roller coater, that’s just the way it is. I think your stormy metaphor is fantastic – it’s very wise; and just as the weather will have good days and bad days, so do you – I’m SO excited that you’re feeling better on the whole, and feeling insecure has been a life-long battle for me too, my low self-esteem holds me back all the time! Know that I’m sending lots of sunshiney good weather your way, pack it in your pocket, and break it out next time you’re feeling rainy! 🌞🌈💕

      Like

  13. sedge808 Avatar

    You are such an inspiration for all of those persons are experiencing chronic pain. G

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      ohhhh… thank you! (I wish I was an inspiration for my terrible singing, or dodgy dance moves… but I’m pleased to think I might help someone with something… even if it is the sh!tshow that is chronic pain!)

      Liked by 2 people

  14. Dora Avatar

    Thank you, Linda, for this smorgasbord of descriptors. They’re so helpful in community with one another, gaining wisdom from each other’s experience.

    I love how the metaphors shine a light on the nature of chronic illness and pain. I’m not sure what metaphor best describes my experience, but as a writer maybe it’s a constant editing of rough drafts of what I think my trajectory will be and finding I have to revise and “re-vision.” I think what helps is focusing on the moment, where I am, not where I ought to be, allowing God to be the Author, trusting Him.

    Liked by 2 people

    1. The Mindful Migraine Blog Avatar

      I LOVE the idea that we are always working on a draft of our next chapter, then turning the page to discover how life will unfold – fabulous!💕

      Liked by 1 person

  15. thomasstigwikman Avatar

    “The neat moral lessons of the hero’s journey do not help me when my body will not re-enact that story. A neat ending does not help me live my messy middle.” — I can certainly understand that phrase. Meander, Spiral, Explode sounds like a good book. I have not experienced a chronic illness or chronic pain so I cannot answer your question. The closest I can think of a slipped disc but that lasted only a few weeks, and perhaps measles as a kid, which was miserable and I got pneumonia as a complication, but again only a couple of months in total.

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Sometimes the pain is emotional too – broken hearts can take a long time to heal, grief can leave us down in the dumps or wallowing, even shame can ‘sting’ and ‘burn’… I’m SO glad though that your life has been fairly pain free – and so grateful that you still have so much empathy for others! 🙂

      Liked by 1 person

      1. thomasstigwikman Avatar

        I am so sorry Linda and thank you for your kind words

        Liked by 1 person

  16. Willie Torres Jr. Avatar
    Willie Torres Jr.

    Beautifully written, Linda. I love the idea that healing doesn’t have to follow a straight path; sometimes it meanders, loops, and wanders, yet God is still at work in every step of the journey. 🙏

    Liked by 1 person

    1. The Mindful Migraine Blog Avatar

      Indeed! As cliche as the saying is, sometimes we really do have to ‘trust the process’ – we’re never alone! 🙂

      Liked by 1 person

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